“So, I prayed. Asked for God’s Guidance. We prayed over Kristian as a family. Dancing next to my son in his hospital room became therapeutic for all of us.”
“One of the first facts we learned was that children with Down syndrome are more likely to get leukemia. When my husband read those words to me, my heart sank, and I had a sickening feeling this would be one of the hardships we’d be facing someday.”
“It’s known as the ‘great imitator’ because it is good at presenting as other things: the flu, even cancer.”
“‘Your son either has an infection, or he has leukemia.’ My heart stopped in that moment. I didn’t know if I was ever going to be able to take my son home, or if I was going to lose him.”
“She saved me, more than once, she saved me… little by little I was able to find joy in life again.”
With having a moderate case of progeria and knowing I aged faster, I was terrified I would never find someone to love me for who I was.