😪

Sad

Sad

‘My wife must regret spending her life with me. If she met someone different, she’d have perfectly healthy children,’ I told myself. ‘He is one of 34 people known to have this.’ My heart sank. ‘What? In the country?’ ‘No, in the world.’

“I remember thinking, ‘Maybe we just aren’t the best of parents.’ Little did I know my wife was secretly researching and had discovered a condition. One day, she showed me a video. My heart sunk. I felt dizzy. Straight away, I knew this was what our boy had.”

‘A manager told me there was a noise complaint of a baby crying. ‘He did not cry, he giggled twice.’ I was told I immediately had to pack up to leave.

“Kristopher looked at me and said, ‘Mom why did we have to leave?’ ‘Are you kidding me? He did absolutely nothing.’ Then she says, ‘Well, can you come another day to see it?’ I looked at her. ‘I work full time. Do you realize what an achievement it is for me to take my boys to see this? I don’t understand why I am being kicked out. Are you serious?'”

‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’

“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”

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