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Surprise

Surprise!

‘How old are you?’ I thought that was strange. ‘I’m 26,’ I told him. ‘Oh, you’re young. This could mean nothing.’: Mom says the ‘beauty far outweighs the challenges’ of daughter’s Down syndrome diagnosis

“The nurses started to really study Lucy. I could hear them say she was ‘really floppy, and was not moving her arms and legs.’ That her arms and legs would flop down to the table when the nurses would pick them up. Finally, she asked if she could speak candidly to us. I still feel those conflicting emotions every now and again, but my grateful and happy feelings far outweigh the fearful or sad ones.”

‘WHAT ARE YOU NOT TELLING ME?!’ We held her in our arms as she drowned in her own lungs. All I could do was love her.’: Mom mourns loss of daughter to Spinal Muscular Atrophy 

“One phone call doubled her life. As I stood there with my husband, holding our 21-month-old baby girl, I felt helpless. I helped bring her into this world, and if she had to die before me, I wanted to be there as she left it. The moment her heart stopped beating, I wasn’t sure mine would keep going. It did. I questioned why. I’d just spent 2 years of my life being a full-time mom and caregiver, and in a moment, everything changed.”

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