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‘Mom, I want to join cross country!’ She looked confused. If your child had a life-threatening disease, you’d hesitate too.’: Runner with cystic fibrosis follows dream, ‘Giving up wasn’t an option’
“Who’d believe a little girl like me with such an evil disease would be SO GOOD. My mom called my dad and said, ‘Your daughter is winning, and not just by a little!’”
‘You have an 80% chance of getting breast cancer.’ I’d worked so hard to feel confident in my own skin. Would surgery change that?’: BRCA1 carrier details self-love journey, ‘You’re stronger than you know’
“I spent most of my life at war with my body. I heard one of the girls utter the word, ‘Pig.’ Me. They thought I looked like a pig. I looked in the mirror and realized I didn’t look like them. I was different.”
‘When he needs me, he can reach out that cute little hand and mine will be right there, ready for him. Steady for him.’: Special needs mom shares ode to brave son with extra chromosome, ‘I hold his hands, but he holds my heart’
“Every step he takes is a mountain climbed, every word he signs or says is a dream realized, every milestone met, a prayer answered. He is the bravest person I know.”
‘He’s a HORRIBLE little boy.’ My heart broke into pieces.’: Mom details parenting two children with ADHD, ‘The tears and tantrums were worth it’
“Parenting two teens with ADHD is a walk in the park, if it’s Jurassic Park!”
‘I used to wonder why in the world parents would legally change their child’s name. Yet here I am, absolutely delighted.’: Mom explains legal name change for daughter with Down syndrome
“You see, 8 years ago on the day she was born, we had a different name and a different daughter in mind. She is like nothing I imagined, yet everything I hoped for.”
‘He’s coming to kill me!’ My mom covered my mouth to stop the screams. What was really hurting me was the monster inside.’: Chronic illness warrior shares journey, ‘Never give up hope’
“Would you believe me if I told you a tick the size of a poppy seed destroyed my life? I’d go around my perfectly clean room shouting, ‘Dirty! It’s dirty!’ I jumped out the first story window of my house. The pain was too much.”
‘I could feel in my soul something was off about this pregnancy. ‘We can’t find anything worrisome.’ They were missing something, and I knew it.’: Couple uproot themselves for son’s Angelman Syndrome diagnosis, ‘He is our little angel’
‘I could feel in my soul something was off about this pregnancy. ‘We can’t find anything worrisome.’ They were missing something, and I knew it.’: Couple uproot themselves for son’s Angelman Syndrome diagnosis, ‘He is our little angel’
‘As a bereaved mother of a medically-fragile, premature twin, I can finally say I’ve met my ‘people.’ And the funny thing is, I’ve never actually met any of them.’: Mom thanks ‘Insta-Village’ for ‘being my source of strength’
“I turned to Instagram. Right before my eyes was a ready-made group of soulmates. Women who advocate with such ferocity for their children, who live on 3 hours of sleep, who know reference numbers and caloric values and fio2 conversions off the top of their heads. My people.”
‘We have a kitten with no eyes.’ He looked like a mini Frankenstein monster. Instantly, we became advocates.’: Couple shares animal rescue missions, ‘I never planned to own my own personal zoo’
“I was awakened for the next three nights at 3 a.m. by the bright light of her cell-phone in my face, highlighting the picture of a puppy. ‘Please?’ she begged. In a moment of grief, I felt called to act.”
‘I think I’m going to die.’ My body was shutting down. If I closed my eyes, they wouldn’t open again.’: Chronic illness warrior battling Ehlers-Danlos Syndrome says ‘hope keeps us alive’
“I went into the hospital, screaming how intense the pain was. The staff took my parents out of the room to ask, ‘Is she pretending to be ill for attention?’ I thought once I was diagnosed, all this would change.”
