Albert Einstein

‘My mom noticed a hole above my tailbone she could fit her pinky into. The doctors told her, ‘As long as it’s covered with skin, it’s nothing to worry about.’: Woman with spina bifida and fibromyalgia suffers from ‘back attacks’ and ‘wild symptoms’

“During birth, the umbilical cord was wrapped around my neck. In order to save my life, the doctor had to act fast. My mom’s tailbone was broken. Then like any other mom, she diligently looked over my body and immediately noticed a hole above my own tailbone. The doctors told her, ‘It’s nothing to worry about.’ But at 7 days old, I had a temperature of 104 degrees. As I grew, so did the tumor. It tightly wrapped around my bladder and kidneys, slowly killing me.”

‘Did she stick her finger in the power socket?,’ strangers asked. They were being ignorant, insensitive.’: Little girl embraces ‘fuzzy’ hair caused by Uncombable Hair Syndrome, ‘I look like a lion with a crazy mane’

“She was picture perfect, blonde hair, blue eyes, so cliché. But around 3 months, we noticed something different. Her hair was growing straight up, not flattening down. It glistened in the light. ‘What’s wrong with her hair?’ Complete strangers would peer into her stroller, stare, take pictures without asking. One lady said, ‘Your daughter looks just like Doc Brown, the crazy scientist from Back to the Future!’ Our little girl was so special.”

‘We nicknamed her Chucky, from the horror films!’ Her hair got crazier, bigger. Wiry, matted, like it was crimped.’: Mom shocked by daughter’s ‘wool-like matted mess’ blonde hair, learns of rare ‘Uncombable Hair Syndrome’ diagnosis

“She was born with a head of thick, jet black, fluffy hair! But overnight, her hair came through poker straight, and pure white-blonde. She looked like a newborn, fluffy chick! Her hair looked full of static, wiry, like sheep’s wool. Slowly, it became worse. Hard to control. It got bigger, wilder as she grew, painful to brush. A lady mentioned it, but to be honest, I thought nothing of it. Then I realized it might be a problem.”

For our best love stories, subscribe to our free email newsletter: