alopecia education

‘I hid behind my mom the 1st day of kindergarten, afraid to walk into a room of kids who did not yet know I was different.’: Woman with alopecia shares self-love journey, ‘I show up for myself’

“A close friend asked, ‘Can you be a bridesmaid at my wedding?’ I realized I couldn’t do it with my usual head coverings. The whole time at the wig shop, I cried. With each one I tried on, I felt like I was giving up, forced to resign, like I was surrendering to a new life with no hope.”

‘My life was out of control. I drank as much as possible to escape. ‘Why is this happening to me?’ I only had half of my hair left, but I couldn’t give up.’: Woman with alopecia takes back her life, ‘I made myself a priority’

“I covered all of the mirrors in my apartment and closed all of the blinds. I didn’t want to see my family or friends. I didn’t want anyone to be near me. I was so ashamed and disgusted with myself. My hair was my security blanket, but it was almost gone.”

‘I could never date someone without hair.’ I’ll never forget the look of disgust on his face.’: Woman with alopecia ditches wig, ‘It has shown me I can do anything I set my mind to’

“I would go into the bathroom stall during halftime and re-apply the tape that held my wig on. I saw nothing beautiful about my bald head. When they called me ‘baldy’ or said, ‘Lindsay is ugly,’ I believed it was true. I took my wig off mid-run. And for the first time, I saw nothing beautiful about it. I finally felt like I was the Lindsay I was always meant to be.”

‘Smoking when you have cancer? Are you insane? You might as well jump in front of a train!’ My first time going outside as a baldie was horrible.’: Woman with alopecia advocates for hair loss, ‘I am beautiful, with or without hair’

“I was known for my beautiful hair. It was one of my biggest ‘selling points.’ One day, I woke up and my hair started to fall out. ‘When you are almost bald, please come back and we will look at it again.’ Five days later, I was back. I went from having really beautiful hair to being a baldie with a wig.”

‘Her hair loss isn’t from stress.’ The pleasant chit-chat stopped. ‘There’s no cure for this.’: Little girl diagnosed with Alopecia starts head scarf company to ‘help all of the bald kids’

“We noticed a handful of brown curls on Rosie’s pillow. ‘Maybe she’s stressed about the new baby?’ The next morning, even more curls. ‘Maybe she’s allergic to her shampoo?’ Monday came and the last of her hair fell out. Our pediatrician assured us it was stress. It wasn’t. Our hope that this would be a temporary condition, even a funny story someday, slowly faded. Instead, we had to get used to the unkind stares and finger-pointing.”

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