amniocentesis

‘A portion of her chromosome is missing.’ We had to prick her on the foot to get her conscious again.’: Mom of special needs twins, one with a chromosomal deficit, one autistic, says ‘I never imagined my journey as a mom would look this way’

“A few weeks later, we received the results. ‘Julius has a diagnosis of autism.’ I went from raising one special needs child to two. I learned quickly I would not be able to have typical ‘mom’ conversations with other new moms. I realized most things parents took for granted were not part of my journey.”

‘THERE’S A HEARTBEAT!’ she screamed. Next, we found ‘the bump.’ All I could feel was shock.’: Baby survives twice despite all odds, ‘he was worth every step of the way’

“My doctor saw blood and wouldn’t even attempt to check if my baby was alive. ‘WHAT?! You’re not doing an ultrasound? Blood work? Doppler?’ He shook his head no. ‘There is no use. You’re losing your baby.’ He dismissed us without emotion and left. The next day, we went to the OB to confirm the miscarriage. WHOMP WHOMP WHOMP. The nurse burst in, full-on sobbing. We were urged to terminate the pregnancy.”

‘Finally, just my mommy and daddy.’ He sighed, before taking his last breath. We whispered, ‘We love you.’: Mom gets sign from baby in heaven moments before giving birth to rainbow baby daughter in hospital

“The day of the c-section I told my husband, ‘He will be with us, just keep an eye open for signs.’ After tear-filled moments in pre-op, we stopped in the hall. I laid there praying, staring up at the ceiling tiles. Just above me was a small sticker on an air conditioning vent. That’s when I saw it. In that moment, I smiled, so relieved. I knew he was here, watching over us.”

‘I went home after my son’s transplant, only to receive an angry letter about the ‘eyesore’ exterior of my home.’: Woman’s son diagnosed with Stage 4 cancer, community unites to clean her home in wake of insensitive complaint

“My son kept holding his right side and screaming. They told me he was ‘just constipated’. ‘Constipation shouldn’t be making him scream.’ They thought I was some crazy helicopter mom. The doctor’s response? ‘Well, if it was real pain, you holding and consoling him wouldn’t be making him feel better like it is now.’ Boy, was she wrong. I could feel in my spirit something was wrong with my baby boy.”

‘She put her tiny hand around my finger. We said our hellos, then we said our goodbyes. ‘It’s okay, mama. It’s going to be okay.’ It wasn’t.’: Woman terminates pregnancy after lethal Trisonomy 13 diagnosis, vows to to ‘carry her with us for the rest of our lives’

“I remember the phone call as clear as day. I was home, and our daughter was playing in her room. The phone rang. We were told that our baby did not have Down Syndrome. There was a ‘but’ at the end of the sentence. Then the tears came. Loud obnoxious tears. I hung up the phone and cried as hard as I ever have. She wasn’t going to live.”

‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’

“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”

‘What are you doing in the boy’s bathroom? You look like a girl!’ The longer it got, the more judgemental others got.’: Boy grows hair to donate to kids in need, ‘Heart, not hair is what matters’

“‘That is such irresponsible parenting.’ He knew his own story. He knew the battles I’d faced when he was just a tiny little thing, and he wanted to help other families who were not as lucky as us. He had this big grin on his face when he touched the back of his head and felt his neck.”

‘The doctor called…the blood screen came back, it’s not good.’ My heavy 22-week pregnant body fell to the floor. It’s normally at this point people want to talk about their options.’

“At worst he’ll never be able to feed himself and at best he’ll mop the floors of a fast-food restaurant one day,’ he said with a wave of his hand, dismissing any room for hope.  Option 1 is you terminate the pregnancy. We don’t do that here, but we have a clinic we can send you to.”

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