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‘I asked my parents, ‘Why am I not like all the other kids?’ to which they replied, ‘That’s just how God made you.’: Young woman with Spinal Muscular Atrophy pursues career, ‘I found a way to make life happen!’

“I’d sit on the sidelines during PE while my peers played and had the time of their lives. I felt envy toward able-bodied children. I was that awkward girl in a wheelchair who didn’t know anybody. I didn’t fit in. One morning, I awoke to muscle loss in my hands. ‘But how will I create my art?!’ I had to find a way to make life happen.”

‘Caleigh complained of back pain. ‘Her spine is collapsing,’ the doctor said. My sweet daughter was curving.’: Mom to daughter with muscular dystropy says ‘not every bad situation has to have a bad ending’

“Out of the blue, her ‘best friend’ no longer wanted to be her best friend. Countless strangers walk up and ask why she is using a ‘grandma scooter’ to get around. Any time she falls, people stare or laugh instead of rush to assist her. Still, she does not believe in ‘I cannot.’ Through all the needle sticks and surgeries, she does her best to comfort ME.”

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