Arthrogryposis

‘Mom, I don’t like my hands.’ Her gloves always had an extra space. She came to me with her piggy bank, begging for four-fingered gloves.’: Little girl with limb difference ‘beaming with joy’ after gifted custom gloves

“For the first time, she realized she was ‘different.’ This was her cascading moment. This meant something. I put it out there, hoping for ideas, suggestions, anything. And the glorious interconnectivity of the internet answered back.”

‘Kerri, get a grip!’ the doctor said. I could only take Tylenol after surgery. I was sure I was going to die.’: Woman with arthrogryposis muscle disorder says ‘nothing is impossible with a fighter’s soul’

“I looked like a pretzel, but my mom wasn’t able to hold me for hours. Doctors started discussing ‘options.’ They told her I wouldn’t be able to do much. They said I would be better off if my parents decided to sign me over to the state. My mom immediately asked to be transferred.”

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