ASD

‘How do you feel?’ I said, ‘Shocked.’ But the relief I felt was unreal. Tears streamed down my face.’: Woman diagnosed with autism at 30, ‘Autism is not something I have. It’s who I am.’

“As my phone began to ring, I noticed there was no caller ID. My heart skipped a beat, my throat tightened, and I froze. I knew this was it. Why were they calling now? This was not a good time. My report was ready. I felt the blood rush to my head. I was walking through a busy street. Tears streamed down my face. I had waited for forever. Why had we not seen it for so many years? I was 30 years old – so much of my life had been a lie.”

‘I find you arrogant, rude, disrespectful and jealous.’ A workplace conflict left me hurt. She didn’t believe a single word.’: Woman learns of autism diagnosis at 23, ‘I finally learned the truth. I am not broken’

“Teachers would say, ‘Lauren is very polite, gifted, such a cute little girl.’ My peers started to reject me. My school life was marred by rumors and taunts. I began to tell myself, ‘There is something wrong with you.’ I could never remember to bathe. I once went half a year without washing my hair. At age 23, I finally learned the truth. I am autistic. I am not broken.”

‘My daughter came home from preschool different. She was biting herself. She stopped speaking, sleeping, playing with toys. I could no longer write it off.’ Mom receives Rett Syndrome diagnosis, told it’s ‘one of the most severe cases’

“I get a call from the geneticist. The call drops 3 separate times. The most important call of our life and I miss it. I sit and wait. My phone rings again. He says, ‘Genetics just confirmed Evie has Rett Syndrome.’ He says, ‘There’s no cure. We can’t change it. You can’t do anything.’ My heart sank. This was serious.”

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