atrioventricular block

‘Parts of our baby’s brain were missing. I spent all my time crying. My husband spent his time avoiding it all. ‘Please don’t plan a baby shower.’ I didn’t want to return things if my baby died.’ Woman’s baby diagnosed with HPE, claims there’s ‘hope after prenatal diagnosis’

“Everyday interactions like strangers asking about my baby in the grocery store felt like ripping open a wound. I tried to prepare my 3-year-old for the chance that his baby sister may not come home from the hospital. As my due date approached, we considered planning for a funeral. But how do you truly prepare for the death of a child? I felt so bitter.”

‘I felt them again last night.’ I was suddenly a single dad to 4 boys. This wasn’t supposed to happen.’: Man loses wife to Cardiac Sarcoidosis, vows to ‘tell her story’

“We talked a bit, fell asleep. The next thing out of her mouth was a gasp. I shook her, screamed her name. No response. A wave of terror came over me as I fumbled to call 911. A machine violently compressed her chest over and over. They wouldn’t stop until I gave the word. I started to get pleading looks from the doctors. As each excruciating second passed, hope faded. Death enveloped the room. I finally uttered the words, ‘It’s enough.'”

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