‘I was in survivor mode. I wouldn’t let myself feel. I couldn’t be weak; I had to keep going. People asked, ‘When will they grow out of it?’ I remember getting to a point where I thought, ‘This is going to kill me. I need to accept it.'”
‘No, not again! I can’t handle another child like this!’ I was angry at people who asked, ‘Are you gonna try again for a ‘normal’ child? I sat in the bathroom, crying.’
‘My wife must regret spending her life with me. If she met someone different, she’d have perfectly healthy children,’ I told myself. ‘He is one of 34 people known to have this.’ My heart sank. ‘What? In the country?’ ‘No, in the world.’
“I remember thinking, ‘Maybe we just aren’t the best of parents.’ Little did I know my wife was secretly researching and had discovered a condition. One day, she showed me a video. My heart sunk. I felt dizzy. Straight away, I knew this was what our boy had.”
‘It was 6 a.m. I froze. ‘That’s weird. She never calls this early.’ When I arrived, he kept holding his stomach. Mom’s ALWAYS know what’s wrong, but she couldn’t figure this one out.’
“He didn’t say much. I couldn’t get any words out. He ran up and gave me a light little poke before running away. All I could think was, ‘Why? He’s only 14.'”
‘Does your child have any special challenges I should be aware of?’ Mom’s journey through Autism and Lyme Disease
“How could I tell his new teacher just how much my son has to overcome because his mama simply isn’t like the other moms in his class?”
