“During birth, the umbilical cord was wrapped around my neck. In order to save my life, the doctor had to act fast. My mom’s tailbone was broken. Then like any other mom, she diligently looked over my body and immediately noticed a hole above my own tailbone. The doctors told her, ‘It’s nothing to worry about.’ But at 7 days old, I had a temperature of 104 degrees. As I grew, so did the tumor. It tightly wrapped around my bladder and kidneys, slowly killing me.”
‘My mom noticed a hole above my tailbone she could fit her pinky into. The doctors told her, ‘As long as it’s covered with skin, it’s nothing to worry about.’: Woman with spina bifida and fibromyalgia suffers from ‘back attacks’ and ‘wild symptoms’
‘A portion of her chromosome is missing.’ We had to prick her on the foot to get her conscious again.’: Mom of special needs twins, one with a chromosomal deficit, one autistic, says ‘I never imagined my journey as a mom would look this way’
“A few weeks later, we received the results. ‘Julius has a diagnosis of autism.’ I went from raising one special needs child to two. I learned quickly I would not be able to have typical ‘mom’ conversations with other new moms. I realized most things parents took for granted were not part of my journey.”
‘Beth, there’s police at your house. Are you ok?’ I found my son handcuffed to a hospital bed, drugged.’: Mom advocates for son with severe autism, PANDAS, ‘Don’t ever give up on your child’
“I locked my daughter in her room. ‘He’s gonna get me. Mama, save me.’ He bit my arms, hands, and chest, drawing blood with each bite. I begged him to stop. It was too late. He was not him. I fell beside the couch. I felt like a battered wife, except it was my child. My child who, after a rage, would cry and kiss me, looking at me with big, sad eyes, begging me to ‘fix it.’ I wasn’t mad at him. I was completely broken.”
‘Can I give the a tree a hug?’ She tells me her brain is stuck. ‘Why is the sun shining?’: Caretaker of an autistic child insists ‘I am a better person because of her. I see the world in a changed way.’
“I said, ‘Break a leg!’ She got furious and started yelling at me, ‘Why do you want me to break a leg?? She takes things exactly the way they are, what you say is what she hears, and she processes the language just as it’s spoken. Katy has her own unique way of thinking, which I adore.”
‘No, no, don’t sit next to him darling, move away.’ This sentence cuts like a knife. It shatters my heart into a million pieces.’: Mom of autistic son wishes no other parent to ‘experience this ignorance’
“We were just waiting to see Santa. I will never forget that room, it was so beautiful. All done up with snowmen, lovely lights, Christmas Music playing. It was sensory heaven for my little boy. I will never forget that woman. I will never forget the way she looked at my little boy. The way she stared. The look of disgust on her face.”
‘Somewhere along the line I wanted to stop being intimate, yet, he never complained. He waited patiently for me to return.’: Wife details her ‘miraculous marriage’ in response to viral post honoring husband before writer’s death
“When I wanted to quit my job he said sure. Stay home with your kids? Girls nights out? Breaks from your babies laying bra-less in bed for far too long? He’ll provide for it all. Magic like this man doesn’t happen very often. So, try to capture some of it. Stand in his presence—and enjoy what it feels like to be free. To be fully seen and loved anyhow.”
‘No Jack! No doctor!’ I hold him tightly, feel his heart beating. It is heart breaking. I question why I put him through what feels like torture.’: Mom thankful for affectionate siblings who help calm autistic brother, ‘It just melted my heart’
“I have had to physically put myself between our boy and the floor so he doesn’t hurt himself by banging his head in frustration. It is heart breaking. I make sure to bring Jack to all of his siblings’ visits as well. WHY?! These rare moments. ‘Oh Jack, I’m not hurt. Give me a hug!’ She assured her anxious brother. ‘See Jack, Maddie is okay.’ Olivia whispered into his hear. It quickly became a sister sandwich. How beautiful is that?”
‘We walked towards the line. John made a beeline for the door. ‘I’m here to help. Follow me!’ Tears filled my eyes.’: Mom ‘in tears’ after touching act of kindness for autistic son
“John is autistic and has a great love for animals. We thought it’d be a fun family outing to go to the Aquarium. It was a mad house. There were long lines, people everywhere. Overwhelmed, John made a beeline for the door. My heart broke. The stares stung. A man asked if I needed help. I explained we wouldn’t be staying due to the circumstances. He reached out to shake my hand. ‘My name is Chris and I’m here to help!’ He told me he had a ‘back way.’ My eyes filled with tears. In all our years, this was a first.”
‘How did you know?’ My little baby went completely silent, no words, no babble, nothing. There were warning signs, we just didn’t know.’: Mom’s journey with autistic son
“Does this make me feel guilty? Of course, it does. As a mom you are meant to know these things, you are meant to protect your child. Parents have pulled their kids away from him. They leave him out of play dates. People ignore him, because he cannot talk. This is heartbreaking, but they simply don’t understand.”
‘My son makes fun of the autistic boy in his class and it’s hilarious!’ You could hear a pin drop. We stopped our giggling, and turned to her.’: Mom of son with autism raises awareness about adult bullying
“I immediately thought I must not have heard her incorrectly. No one would think this, let alone say it out loud. She continued without fear. ‘My son has the whole act down. He covers his ears, repeats words, and even does a hand twitch! He has the flap down perfectly.’ My stomach dropped. I started repeating to myself, ‘Do not cry. Do not cry.’ I willed myself to hold it together. My son covers his ears. My son’s hands twitch. My son flaps his hands. And one of my greatest fears is he will be bullied for it.”
