“This feels like the weight of the world because it’s about your entire world: your precious child. Every prenatal screen passed with flying colors. They tell you your child is healthy and whole, and now, they say that very same child has special needs. Here’s how you reclaim your power.”
‘It’s okay. Get in your car and scream. It’s not going to make everything go away, but you deserve the release. Are the tears coming now? Good, don’t stop them.’
‘HE’S FINALLY ON THE PLANE! In desperation, we went to another airline desk to beg for help. She even sat on the floor with him. He was so frightened. He was in a wheelchair due to them medicating him.’
“This is my son, Leo. He has severe autism and the mental capacity of a 3-year-old. This airline refused to let him fly home because he was distressed when they wouldn’t let him have his doll. Police were called, which caused his meltdown.”
‘I’m a 34-year-old woman and I only got formally diagnosed 2 DAYS ago. I’m autistic.’
“I seem fine and happy. They may think I’m trying to be like my child. Or that I am faking it. It’s a weird feeling.”
‘No, not again! I can’t handle another child like this!’ I was angry at people who asked, ‘Are you gonna try again for a ‘normal’ child? I sat in the bathroom, crying.’
‘I was in survivor mode. I wouldn’t let myself feel. I couldn’t be weak; I had to keep going. People asked, ‘When will they grow out of it?’ I remember getting to a point where I thought, ‘This is going to kill me. I need to accept it.'”
‘You don’t understand, they will never help your family.’ I was blown away. He was getting worse by the day. ‘I’ve never had an experience like this before,’ the crisis worker apologized.’
“On my way home I received the phone call. It was totally incoherent from all the screaming. I desperately tried to find out what was happening. It was my daughter. ‘It’s Josh,’ I finally heard through the screams.”
‘I was the victim of a rape. I had a professor who propositioned me, a boyfriend who passed away, a stalker, and cancer—twice. I’m no stranger to a painful past.’
“Easter is about waiting. I know, that sounds absurd. This is a holiday about a Friday free from work and fake grass you’ll be finding around your house for the remainder of the year. It’s about Peeps and your people. A guy on a cross and a guy in a (rather scary) bunny suit. Jesus waited 3 days; it took me 33 years.”
‘My wife must regret spending her life with me. If she met someone different, she’d have perfectly healthy children,’ I told myself. ‘He is one of 34 people known to have this.’ My heart sank. ‘What? In the country?’ ‘No, in the world.’
“I remember thinking, ‘Maybe we just aren’t the best of parents.’ Little did I know my wife was secretly researching and had discovered a condition. One day, she showed me a video. My heart sunk. I felt dizzy. Straight away, I knew this was what our boy had.”
‘I don’t know her name, but she was our hero on our flight home. Everyone on the plane was looking at us, annoyed by my son’s outburst.’
“He had a sudden meltdown and we couldn’t keep him calm no matter what we tried. This flight attendant asked if she could hold him. I warned her he might get aggressive and try to gouge her eyes.”
‘They said your child was being very loud. You knew what I was going to ask. You saw the table I just spoke to pointing at you. I got to your table and you looked at me.’
“I know what I was supposed to say when I went to your table. I was supposed to politely tell you to please not have your daughter yell. I was supposed to offer to move you to another area. I was supposed to offend you by not offending you… I did not do any of that.”
‘It was 6 a.m. I froze. ‘That’s weird. She never calls this early.’ When I arrived, he kept holding his stomach. Mom’s ALWAYS know what’s wrong, but she couldn’t figure this one out.’
“He didn’t say much. I couldn’t get any words out. He ran up and gave me a light little poke before running away. All I could think was, ‘Why? He’s only 14.'”
