autoimmune disease

‘I’d rather die than have a poop bag attached to me.’ My boyfriend didn’t sign up for a sick girl.’: Woman with ulcerative colitis learns to ‘love herself’ despite invisible illness

“’Great, how do we get rid of it?’ The look on my doctor’s face immediately made my stomach drop. ‘There is no known cure.’ Everything I ate caused intense pain and had me running to the toilet. When I told my boyfriend, he nodded and we drove home in silence. I told him if he wanted to end the relationship I would understand.”

‘What’s that? It could be something sinister. You might have a tumor.’ I got fired for being ill.’: Young woman diagnosed with Ehlers Danlos Syndrome after countless tests, ‘I was getting sicker and sicker, but with no answers’

“I was sobbing in bed one night angry at God. ‘Why won’t you take the pain away?!’ I had worked so hard despite being unwell, pushing myself to achieve. I got the grades to study music, my true passion, but was too unwell to go! I was gutted. The emergency doctor uttered the word ‘stroke.’ I was in disbelief. I was only 19 years old.”

‘Two months before college graduation, my symptoms returned. The bloat, the blood, stomach pain, and fatigue.’: Young woman diagnosed with severe Ulcerative Colitis, ‘I felt I would never get my life back, now I embrace it all’

“‘Natalie. He died.’ I can still remember it like yesterday. Being woken up in my freshman year dorm from a call. All I remember next is screaming, ‘No, no, no, no, no!’ Dead. Died. Gone. As time went on, I started feeling sick. Very sick.”

‘You cannot get the flu from the flu vaccine. Ever. No matter what anyone’s told you.’: Certified medical professional urges us to ‘save one another,’ breaks down flu shot myths and facts

“I’ve put a grandfather on a ventilator who couldn’t breathe. I’ve held a newborn with fever while the doctor does a lumbar puncture. I’ve put the final drape over a mother-of-3’s face after she beat breast cancer, but died of the flu. I did all of this knowing full well it was preventable. We had the ability to save those people as a society, and we failed.”

‘I’m often mistaken for being lazy or spoiled. The dirty looks I get would shock you. I may look like a typical 23-year-old, but I’m not.’: Woman with multiple ‘invisible’ chronic illnesses refuses to let struggles ‘overcome her joy’

“My determination isn’t disabled, my fire isn’t disabled, but my body is. For a long time, this was hard to admit. I do my best to show up every day, but it’s not always enough. I can practically smell the resentment from my coworkers. My boss stopped believing me and asked for a ‘doctor’s note.’ Instead, I ended up hospitalized. ‘Is this good enough?’ I snarkily asked. I know I should keep my mouth shut, but I really can’t help myself. The struggle is REAL.”

‘I want to live in my parents’ basement with 13 kids and no husband,’ said 3-year-old me. One part is true. Babies, and lots of ‘em!’: Woman shares emotional battle with Endometriosis, knows she’ll someday ‘be a mama’

“I dreamt of the day I’d turn in my baby dolls for the real deal. Fast forward 23 years, and here I am. Married to the man of my dreams. Our home is full, but our arms empty. We wanted the big family, sleepless nights, poopy diapers. We wanted it. So, we tried. And tried. After 6 months of negative tests, I knew something was off. They found 2 masses on my ovaries the size of a lemon and a golf ball.”

‘After a yoga session, my spine slipped forward. I couldn’t move. I couldn’t roll over. I was a vegetable.’: Woman with Spondylolisthesis, chronic illness claims ‘pain is inevitable,’ but ‘suffering is optional’

“I remember laying in bed, feeling trapped inside myself. I had no idea at the time this injury would turn my world upside down and become the barometer for all the decisions I made for the rest of my life. Working, having a family, being active, or doing all the things a normal 30-something-year-old should do are no longer an option.”

‘I was vomiting. My doctor said it was because I was ‘promiscuous’. Others said it was from grief, after my mom hung herself.’: Woman with chronic illness says pain ‘robbed her of so much,’ but won’t rob her ‘passion for living’

“The pain got so bad. I pulled over on the side of the freeway and called my dad, begging him to come get me. I became confused, disoriented. I remember thinking I could understand why my mother took her own life. It made me realize I either had to fight for my own health, or continue to fade away. I had to be stronger than my mom was. I couldn’t stop fighting.”

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