autoimmune disorder

‘It shouldn’t hurt that bad.’ I was weak, lazy. A complainer. Only 15, doctors had already given up on me.’: Woman diagnosed with Lupus after years of misdiagnoses urges ‘find someone who will listen’

“I could not find my words. I slurred my speech and often got lost driving to places I’d driven to a thousand times. My doctor finally explained pregnancy posed ‘too much of a risk to my life.’ But come December, I saw two little lines on a stick. This little one was determined.”

‘One day, you’ll need a transplant.’ I was DEVASTATED. I never really accepted this, until I had no other option.’: Man with autoimmune hepatitis undergoes liver transplant, ‘It’s my second chance’

“I lost 30 pounds, began sleeping 14 hours a day, and suffered terrible stomach pains. It was raining when I received the call. When I hung up, I watched the raindrops fall down the window in streaks. I was preparing to take my hands off the wheel and hand it to my doctors.”

‘It can’t be bad, you’re young. You look fine.’ I questioned whether my symptoms were in my head.’: Single mom diagnosed with rheumatoid arthritis, ‘I don’t know what tomorrow has in store, but I’m ready to fight’

“I went from busy full days of work to barely handling the commute. I struggled to keep up with other moms my age. Misconceptions such as, ‘Young people can’t get it,’ and ‘You look totally healthy,’ infuriated me. It’s not just a disease for the elderly. I wasn’t fighting only for myself, but also my son.”

‘I’m not sick. Why should I stay at home?’ As a mom of 4 in her second trimester, I plead with you, wash your hands. My husband doesn’t want to raise our family alone.’: Mom of 4 diagnosed with lupus begs people to stay home

“As someone who has battled lupus for the past 16 years and remains on numerous immune-suppressing medications, I urge you to stay home. We know what it feels like to get sick because of someone else’s lack of concern or ignorance. My husband doesn’t want to raise our family alone.”

pain

‘I was vomiting. My doctor said it was because I was ‘promiscuous.’: Woman with chronic illness claims pain won’t rob her ‘passion for living’

“The pain got so bad. I pulled over on the side of the freeway and called my dad, begging him to come get me. I became confused, disoriented. I remember thinking I could understand why my mother took her own life. It made me realize I either had to fight for my own health, or continue to fade away. I had to be stronger than my mom was. I couldn’t stop fighting.”

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