awareness

‘He failed both of his hearing tests. ‘It’s just fluid.’ I could tell something wasn’t right. All of my hopes for him were RUINED.’: Mom advocates for son with hearing loss, ‘Trust your gut’

“I had no clue about hearing loss and had never even met a deaf person. I left that appointment in shambles, feeling so bad for my baby. ‘Is this my fault? Can it be reversed?’ I wanted Mason to experience waves crashing on the shore, crickets chirping at night, the giggles of his sisters. I wanted him to HEAR.”

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

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