awareness

‘He failed both of his hearing tests. ‘It’s just fluid.’ I could tell something wasn’t right. All of my hopes for him were RUINED.’: Mom advocates for son with hearing loss, ‘Trust your gut’

“I had no clue about hearing loss and had never even met a deaf person. I left that appointment in shambles, feeling so bad for my baby. ‘Is this my fault? Can it be reversed?’ I wanted Mason to experience waves crashing on the shore, crickets chirping at night, the giggles of his sisters. I wanted him to HEAR.”

‘Sedated and wearing diapers, I flew 3,000 miles during a global pandemic to have a life-saving surgery.’: After 23 years of not being taken seriously, woman finally diagnosed with 3 rare diseases

“The world was falling apart as a top neurosurgeon prepared to piece me back together. I watched the protests from a small TV in our hotel room and reflected on how I fought for 23 years to be heard by men and women in white coats who minimized my disabling symptoms and refused to acknowledge my struggle was real.”

‘I’ve never been a confident person, you know that all too well. That’s why you chose me to be your next victim that fateful night.’: Woman pens letter to her eating disorder, ‘I’m not keeping you a secret anymore’

“You’ve never really listened to me before, so maybe telling you all of this stuff is pointless. Maybe you’re not even listening now. Even if you are, it’s not like you’re going to feel sorry for me after everything you’ve put me through.”

‘I asked my parents, ‘Why am I not like all the other kids?’ to which they replied, ‘That’s just how God made you.’: Young woman with Spinal Muscular Atrophy pursues career, ‘I found a way to make life happen!’

“I’d sit on the sidelines during PE while my peers played and had the time of their lives. I felt envy toward able-bodied children. I was that awkward girl in a wheelchair who didn’t know anybody. I didn’t fit in. One morning, I awoke to muscle loss in my hands. ‘But how will I create my art?!’ I had to find a way to make life happen.”

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