awareness

‘When my water broke, it was all blood. Something was very, very wrong.’: Woman and son nearly die in ‘traumatic birth’ due to undiagnosed pre-eclampsia and HELLP

“The nurse brought me an oxygen mask. I remember thinking, ‘I’m not going to die, not today!’ and fought off the mask. My mom took my hand, came to my bedside, and said, ‘It’s not for you, it’s for Henry.’ I grabbed the mask and rallied. When everything else in my body was failing me and beginning to shut down, I pushed two times harder and fought to keep him alive.”

‘I don’t really know what to say. Would you like tea?’ I’d just found out my boy wasn’t fine, he’d never be fine, and our life was forever changed.’: Mom’s son diagnosed with rare Vanishing White Matter terminal illness

“He wasn’t able to walk or stand. He was dragging one of his legs and crisscrossing them. Friends and family kept trying to reassure me everything would be okay, but I knew it wouldn’t. I could tell by how the doctors tiptoed around us, the way they were spending so much time with us. ‘It’s progressive, untreatable, incurable, and terminal.’ Despite all this, Sam is joy personified. He is the most incredible person I’ve ever met.”

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