baby diagnosis

‘It appears your baby did not develop a left forearm or hand.’ My whole body was shaking. It was surreal.’: Mom celebrates child born with limb difference, ‘In our eyes, he was perfect’

“Our brief phone call couldn’t have been longer than 5 minutes, yet it changed everything we knew or expected for our future. I had been hoping that they were wrong. Terrified of the unknown, I put off buying anything for our baby. I smiled throughout my baby shower I didn’t even want to attend.”

‘Patty, I can feel him, we have to go.’ There was no time to talk. ‘We love you, I’m so sorry.’ His last heartbeat was lying on my chest.’: Moms are given terminal diagnosis for baby boy, ‘We decided to celebrate. He was going to be loved.’

“I didn’t want to waste any moment I could have with him. It was hard not to notice his body changing, the color leaving, his skin hardening and getting so cold. I often wonder if I made the right decision keeping him with me for so long–but I know I did. Then the time came to hand him over. The nurse kept telling me to take as much time as I needed and I finally had to tell her, ‘If you keep telling me that, I will never leave.’ He gave me the biggest gift of all: he made me a mother.”

‘Put the device away!,’ a lady was yelling at me. ‘I’m deaf, this is a closed caption device for the movie.’: Woman diagnosed with ‘profound hearing loss,’ credits daughter for giving her ‘strength’

“Hands pointed at me as they whispered to each other, ‘She is deaf.’ I feared my daughter would not understand me. I feared I would not hear my daughter. One day, when she was in 2nd grade, a boy made her upset by making fun of my accent. She said, ‘My mom is deaf!’ This was just the beginning for her to witness my challenges. I sobbed as soon as we got home. My daughter comforted me, cried with me.”

‘After my C-section, I heard, ‘Wow! He’s got a big birthmark on his face.’: Baby is born with Port-Wine Stain and Sturge-Weber Syndrome, ‘Never did I think I would have to consider what anti-seizure medication would best keep my child thriving.’

“A bright reddish-purple color covered more than half of my newborn son’s face. ‘Will this birthmark fade? Will it get worse? What will other people think? Can this lead to other health issues?’ Looking back now, those first months of Leo’s life, I was living in fear. I was consumed by anxiety, exhaustion, and confusion.”

‘They whispered to each other. ‘How can that be?’ My heart sank. ‘He doesn’t seem THAT different. It must be a mistake.’: Mom surprised by son’s autism diagnosis, ‘We just chalked it up to ‘every kid is different and learns at their own pace.’

“He was a super chill baby and we thought we had it MADE. I started to notice the other little boys’ interactions with their moms. I began to get worried. I didn’t think anything was different about Landon at first, I just thought I was not a good enough mom. I thought I wasn’t teaching him these little things well enough. This was our first child and we didn’t know any different.”

‘Wait, you’re not kidding? 30 seconds ago, our life was perfect.’ I suddenly needed him in my arms.’: Mom to son with Down syndrome says ‘you’re not the baby I thought you were, but you’re still MY baby’

“We were on cloud nine: our baby was here, he seemed to be in perfect health. I remember hugging him, saying, ‘Welcome to our family! I’m so happy to finally meet you!’ I commented on his nose and ears, but again, no red flags. Babies fresh from the womb all look like aliens anyway. His face suddenly looked completely different. I remember thinking, ‘This is not your fault.’ From the first moment I met him, he’s been whispering to me, ‘It’s okay, Mom. There’s nothing to be afraid of.'”

‘We found a hole.’ His heart was beating. What did we miss?! I wasn’t a special needs mom. I didn’t have the qualifications for that.’: After 7 kids, 3 miscarriages, mom births baby with Down syndrome, ‘he is our extra special little man’

“‘His heart could be repaired,’ I thought. We could get past that, carry on. And then the doctor said, ‘This is very common with Down syndrome.’ That I didn’t want to hear. Surgery wasn’t going to fix that. I put it out of my mind. Our baby wasn’t going to have Down syndrome! Then the doctor said, ‘You have the option to terminate.’”

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