battling chronic illness

‘What do I need to do to make it?’ I walked through those doors, standing at 315 pounds with a disability I hid. ‘Let’s give this a shot.’: Woman with Klippel Trenaunay Syndrome finds peace in chronic illness

“I was spending every day off work as a first responder on a recliner or in bed, surrounded by pain and fatigue. My disease was here to stay, after it had been silent for 12 years. I’ve always been hard-headed. ‘I will do it on my own.’ But when my health became something I could not hide anymore, I knew it was time to share it, despite the fear of what they may judge.”

‘Did yoga do this to you?’ I woke up seeing double. Things took a turn. ‘I know it’s a lot to take in.’ I was shocked.’: Young woman comes to terms with multiple sclerosis diagnosis, ‘I won’t let this hold me back’

“I remember sitting in the waiting room. I lost all control of myself and burst into tears. What if the MS diagnosis was wrong? It felt wrong! I just wanted to opt-out of this, but there was no way. Still crying, I signed my name. All I felt was a little pinch before I went completely numb.”

‘A co-worker came up to me. ‘Half your face looks a little strange.’ I tried to respond, but couldn’t move my mouth to speak. My first thought was, ‘Am I having a stroke?’

“I rushed to the hospital. The pain was so bad I literally thought, ‘There’s no possible way I am going to survive this. A human being can’t survive this much pain.’ I was prescribed a copious amount of medication. When would I stop needing it? Never. I thought I would never get a chance to be a mom, but I didn’t want to give up my dream.”

‘I began purchasing baby formula for myself. ‘How could this have happened?’ I felt my boyfriend distancing himself out of fear.’: Young woman diagnosed with rare Elher’s Danlos Syndrome

“I was literally watching myself decay. I couldn’t stand up to get a glass of water without blacking out. I felt judgement in every public restroom I threw up in. My boyfriend of 3 years, the man I planned to marry, broke up with me. I was ‘too sick.’ It all happened so quickly. I went from helping children get off of feeding tubes, to needing one myself. I spent the majority of my hospital admission sobbing, grieving the life I’d walked away from.”

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