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‘I probably won’t outlive my sister or may not be able to see my children grow up. ‘Do you feel like a burden?’—Yes, I do’: Woman with Cystic Fibrosis details journey, ‘If you search for the silver living, you’ll always find it’

“I had no energy to move, let alone scream. My parents had nothing to be concerned about. All was a mystery. I hid behind the paper and the little book in my wardrobe no one knew existed. I was fine about everything and I sort of still am, but I don’t want to die yet.”

‘My husband divorced me after my baby was born. At 28, I had to move back in with my parents as a single, special needs mom.’: Mom to daughter with Cerebral Palsy finds new perspective on ‘true happiness’

“Emily was only 2 pounds. She was so small my husband’s wedding band fit around her tiny wrist. She was crying, but I could not hear her. It didn’t seem real. Quickly, I was told by nurses, ‘You cannot touch her.’ I felt helpless. With each day, it became more and more evident my marriage was not going to survive this horrific ordeal.”

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