birth story

‘What’s wrong with her fingers?,’ my husband asked. ‘They look strange, but they’re perfect.’ Then he saw her toes.’: Parents surprised by daughter’s Apert Syndrome diagnosis, ‘she just wants to be loved’

“The doctor yelled to get the NICU team as soon as possible. They came in so fast we could hardly get a picture. I don’t remember anything afterwards except that my husband googled her syndrome based on her appearance, and I was left alone in the delivery room. No husband. No baby. I asked for a Diet Coke. They only had Diet Pepsi.”

‘Hubby: ‘I sent these pictures to work to show them the baby. They’re good, right?’ Me: ‘You’re kidding me, right? OH MY GOD! I am NOT covered up down there! Did you even LOOK at them?’

“Hubby: (in a rising and panicked voice). ‘Well, yeah. And I even had your DAD look at them before I sent them!’ My dad’s eyes are bulging out of his head. Dad starts trying to defend them. ‘We were just looking at your faces, it was a cute family photo…. Well, from the top up!’ My husband goes into damage control. ‘Oh no, oh my God, how did I miss that?’”

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