blisters

‘My brother came to me in a dream last night and told me he was in heaven. He isn’t in pain anymore.’: Mom of 2 children with rare skin condition loses youngest unexpectedly, ‘Nothing could be done. My baby was gone forever.’

“’They’re here!’ I saw my husband staring with a scary look on his face. Everything went out of focus. I walked to his bed, and I sank to the floor. He was gone. I screamed, doctors came running in. They performed CPR but because of his disease, it tore all the skin from his chin to his chest. They told me his heart stopped due to complications. I later found out he was given fentanyl during the flight.”

‘Have you been punched in the face?’ I was ‘mystery girl,’ being ‘strangled alive’ as my tongue blackened.’: Woman survives severe sepsis caused by infected, impacted wisdom tooth

“I was having a quiet dinner with a friend. It felt like I had bitten my tongue, but I ignored it and continued our night. Little did I know, the pain I was feeling was my first clue to something much more sinister. I snuggled into my winter pajamas and closed my eyes. Less than an hour later, I awoke choking, short of breath, with a numb feeling on my tongue. I remember the fear and panic in her eyes as I choked on the antihistamine. I knew it wasn’t good.”

‘None of them had seen a case like Dominic’s. The amount of birthmarks was shocking.’: Mom gives birth to son with rare skin condition

“I willed my legs awake from the spinal tap, like Uma Thurman in ‘Kill Bill,’ and then I physically dragged myself from my bed to a wheelchair to see him. I demanded a nurse take me to him. He was blue, his skin covered with deep purple spots. He wasn’t crying. The whole room was especially quiet. They had no clue what was going on with his skin.”

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