bone

‘I wouldn’t step out of the house in shorts or skirts because of the scars on my legs. ‘Why me?’ I was tired of crying out to God.’: Woman with rare Ollier’s Disease disorder and Scoliosis finds self acceptance, ‘I was handpicked’

“I became so caught up in trying to appear ‘normal’ I began to lose myself. At the end of the day, I felt like I was living a double life. I would often wear long sleeve shirts or jackets to hide my left arm. I wanted people to look beyond the scars and differences.”

‘The doctor had tears in her eyes. ‘We can’t say if he’ll make it or not.’ Fractures started appearing in the scans, in every limb.’: Woman births baby with Brittle Bone Disease, ‘My job is to love him well’

“At our 20-week ultrasound, we received the news our son’s femurs looked short, in addition to smaller arms. The kicker was he wasn’t fitting any specific mold. ‘We can’t say definitively if he’ll make it or not.’ I leaned on my faith more than ever.”

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