brain cancer

‘I noticed changes in Jason’s behavior. He was tired and depressed all the time. His headache would just not go away.’: Widow re-marries after loss, ‘Celebrate the good every single day’

“Jason ended up in the ER. Within hours, we were told, ‘He has a 5-7 years left to live.’ Or so we thought. Only 14 months later, I’d attend a grief camp with my kids where I would meet Jason #2. We kept our relationship secret, at my request. I adored him. I was nervous whether my in-laws and friends would accept my new love.”

‘3 weeks after our trip to Disney, I stared at a black and white image with a mass that took up a third of my son’s brain.’: Dad urges ‘never take a day of normalcy for granted’ during quarantine after losing son to brain tumor

“We were isolated for 28 days in the hospital room. He was immunocompromised. Our world consisted of hand sanitizer, hospital masks, and surgical gloves to avoid contamination. As we watch the news, we hear the increasing mortality rates for coronavirus, some 3%. I would’ve given anything to hear those numbers for my son. Normalcy was ripped from our hands.”

‘With perfect clarity, our 20-month-old looked up at us. ‘I love you.’ It was a miracle days before he passed.’: Father recalls tender moment son diagnosed with childhood cancer shocked parents, ‘Those words are forever etched in my memory’

“A miracle came just days before he passed away. At just 20 months old, our son had only verbalized one word. Dog. Yet, he responded to my wife and I as we laid over his crib, tears falling from our cheeks, expressing our love for him. With absolute perfect clarity, our little boy looked up at us. I held him for the last time. I crave his smile. I miss seeing his eyes light up.”

‘Help me, mama. Pleeeease, help me!’ Covered in sweat, he escaped the doctors. That was it! I was DONE.’: Boy beats cancer 3 times, loses vision, ‘he wasn’t supposed to survive his first day’

“The doctor looked me square in the eye. ‘Brain tumor.’ WHAT?! I looked at my baby playing with Tonka trucks. ‘I’m sorry, but I think we both knew it.’ WHAT? Are you freaking kidding? No, I didn’t! I sat in the pre-op area signing consent forms. I wrote in large letters, ‘NO STUDENT OR RESIDENT IS TO TOUCH HIM.’ Never again was I going to just accept what a doctor said without question.”

‘No. It’s just a sinus infection.’ I demanded my husband get tested. A full-blown yelling match ensued. ‘OK, OK.’: Woman loses husband to Brain Cancer after ‘sinus infection’ misdiagnosis, ‘this is a never-ending healing journey’

“Ray, the epitome of health, awoke to a terrible migraine. I asked for a cat scan. ‘He is FINE,’ I was told. I knew in the depths of my soul something wasn’t right. 20 minutes later, the same doctor and 3 nurses rushed in. The door flew open so hard it bounced off the wall! The nurses ripped cords from walls, tossed his belongs on the stretcher. ‘Whoa, what’s going on?!’ The doctor, without even looking at us, said, ‘We found a mass. It’s the largest I’ve ever seen.’ He turned and left the room, never to be seen again.”

‘Is it cancer?’ I had to tell my son, ‘I don’t know.’ There’s no treatment. We were told go home and live life.’: Twin brother suffers 2 brainstem strokes caused by a cavernous angioma, mom says it’s made her children ‘kinder, better’

“I had 3 happy, healthy, perfect kids. Until I didn’t. Zach called home from the school nurse with a headache. I followed our standard rule, ‘You aren’t throwing up, you don’t have a fever. Go back to class.’ For 2 days, he told me his eyes and ears felt weird. I told a friend, a nurse, that my son was holding his head funny. Within a minute she said, ‘You need to get him checked.’ I said, ‘Oh ok.’ Then she said, ‘I mean now.’”

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