brain surgery

‘The neurosurgeon apologized profusely, looked me in the eye and said, ‘You were right.’ She was walking all night, screaming bloody murder.’: Mom of chronically ill child urges parents ‘if you feel something is wrong, it probably is’

“During the day, she was completely normal. But at night she would pull out her hair and headbutt her bedroom wall in her sleep, begging me to ‘make it stop.’ She was deteriorating. I had to fight for answers. I had to beg for care for my very complex child. My gut was telling me something was being missed.”

‘Calm down a little. Sleep it off.’ My baby had an egg-sized lump on his skull. I was told I was ‘just a stressed out momma.’: Baby diagnosed with Chiari Malformation after mom’s concerns brushed off for months, ‘I’m so glad I trusted my gut’

“Rowen’s skull was swelling. He started grabbing his head constantly and screaming. He was throwing up non-stop and couldn’t even turn his head. I kept hearing time and time again from doctors, ‘You just need some sleep.’ It got to the point where every time they saw me, they asked, ‘Are you getting sleep? You need it badly.’ I started to doubt myself. Was I going crazy? But deep down, I knew something wasn’t right. I decided to go with my gut. Enough was ENOUGH.”

‘This is it! I’m not going to make it. He’s going be raising our baby alone.’ I said goodbye to husband for the very last time.’: Mom survives preeclampsia and HELLP syndrome, delivers micropreemie who defies odds, ‘She is a sassy fighter’

“A nurse held my hand and whispered a prayer in my ear. That’s the last thing I remember before falling asleep. When I opened my eyes, I was alone. I tried to lift my hands and feet but couldn’t – I was tied to the bed. I began to panic. I couldn’t rest until I laid eyes on my little miracle. She was kicking, flailing her arms. I touched her finger and she grabbed my finger with all her might. It was then I knew, not only would she, but WE, would be just fine.”

‘If we waited 2 more weeks, you would’ve been paralyzed from the neck down.’ I was in and out of consciousness. Death wasn’t the only thing on my mind.’: 15-year-old undergoes brain surgery after feeling dizzy, discovers rare chronic brain condition, Type 1 Chiari Malformation

“I knew something was very wrong. I was barely able to hold myself up. ‘Really Jen? Pull it together.’ No one had answers. All I heard was, ‘I think you’re depressed.’ I felt like someone had filled my head with cement. At this point, I had given up. I convinced myself I was out of my mind. I laid in that MRI machine and lost track of time. I felt like my life was over at 15. The tech pulled up the images on the computer. ‘You’re going to need a neurosurgeon.’”

‘Sadie is 3. The clock will turn back. Each minute, we’re closer to the dreaded day she begins regressing.’: Newborn diagnosed with Childhood Alzheimer’s, ‘she is the greatest tragedy and blessing’

“Sadie’s birthday was such a bittersweet day. We saw all our hopes and dreams vanish. She is so smart, but we know this will all change soon. Before Sadie was born, we dreamed of her playing sports, helping her get ready for prom, college, and her dad walking her down the aisle. Today, we dream our sweet girl lives past the age of 14. We knew we had to fight this.”

‘Call 911!’ My baby was twitching. I held his limp body. I heard sirens. They were coming for MY child.’: Boy suffering from Childhood Epilepsy undergoes brain surgery, ‘he is now happy and living with half a brain’

“We were getting ready for a nice picnic at the park. Suddenly, the right side of his body went stiff. His oxygen dropped. First firefighters, then paramedics. Our house was full of first responders. ‘Why is nothing working?!’ I wanted to wake up from this nightmare. I wanted him to live. I held my breath.”

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