brain

‘If we waited 2 more weeks, you would’ve been paralyzed from the neck down.’ I was in and out of consciousness. Death wasn’t the only thing on my mind.’: 15-year-old undergoes brain surgery after feeling dizzy, discovers rare chronic brain condition, Type 1 Chiari Malformation

“I knew something was very wrong. I was barely able to hold myself up. ‘Really Jen? Pull it together.’ No one had answers. All I heard was, ‘I think you’re depressed.’ I felt like someone had filled my head with cement. At this point, I had given up. I convinced myself I was out of my mind. I laid in that MRI machine and lost track of time. I felt like my life was over at 15. The tech pulled up the images on the computer. ‘You’re going to need a neurosurgeon.’”

‘Did yoga do this to you?’ I woke up seeing double. Things took a turn. ‘I know it’s a lot to take in.’ I was shocked.’: Young woman comes to terms with multiple sclerosis diagnosis, ‘I won’t let this hold me back’

“I remember sitting in the waiting room. I lost all control of myself and burst into tears. What if the MS diagnosis was wrong? It felt wrong! I just wanted to opt-out of this, but there was no way. Still crying, I signed my name. All I felt was a little pinch before I went completely numb.”

‘Social media was NOT designed for children. I can’t imagine a worse time to access it than middle school.’: Mom urges us to restrict social media access, ‘don’t give that smartphone power in your home’

“Middle school kids. Your daily parenting may include statements like, ‘If you can’t say anything nice, don’t say anything at all!’ ‘How many times do I have to tell you not the use that word?’ ‘What were you thinking?!’ Then, it happens. We cave. We give them our old phone. Something we haven’t thought about. We aren’t prepared for it.”

‘My son’s tiny body was wracked with seizures. I stroked his tense, shaking face, whispering his name that he was safe.’: Mom says her son is a ‘miracle’ despite debilitating Polymicrogyria diagnosis

“This moment was one I’d never in my 33 years of anxiety imagined happening to me. I held my phone steadily pointed towards my little boy, in hopes of capturing his every move on video. I was witnessing something I’d never have wished on the worst of enemies. I searched ‘Polymicrogyria,’ ran to the toilet, threw up my breakfast and curled into a tight ball. When I tell friends my son has a condition that causes epilepsy, they respond by saying, ‘at least that is treatable.’”

‘Is it cancer?’ I had to tell my son, ‘I don’t know.’ There’s no treatment. We were told go home and live life.’: Twin brother suffers 2 brainstem strokes caused by a cavernous angioma, mom says it’s made her children ‘kinder, better’

“I had 3 happy, healthy, perfect kids. Until I didn’t. Zach called home from the school nurse with a headache. I followed our standard rule, ‘You aren’t throwing up, you don’t have a fever. Go back to class.’ For 2 days, he told me his eyes and ears felt weird. I told a friend, a nurse, that my son was holding his head funny. Within a minute she said, ‘You need to get him checked.’ I said, ‘Oh ok.’ Then she said, ‘I mean now.’”

‘My appendix ruptured while pregnant. ‘She is perfectly healthy,’ the doctor reassured. He was so incredibly wrong.’: Mom births baby with craniosynostosis, ‘she is perfectly imperfect’

“The ultrasound photos showed a perfectly formed body, 10 beautiful fingers and toes. Once born, she cried out one time and then fell silent and blue. Her nasal passages were blocked by bone and my placenta was torn to shreds. Avery’s condition was so much more complicated than any of the photos led us to believe.”

‘Maybe she hasn’t discovered her left arm yet?’ My baby was only using her right hand. Something was ‘wrong’ with my perfect, healthy girl.’: Daughter’s Hemorrhagic Stroke misdiagnosed for months, mom ‘beyond proud’ of her despite disabilities

“At her 6-month checkup, the pediatrician casually asked, ‘Does she switch toys back and forth between both hands?’ When I answered no, she said, ‘Oh no. This really isn’t normal.’ In the center of her brain was a burst vessel. This was both shocking and devastating. We were done waiting for her to ‘discover’ her arm. It wasn’t supposed to be like this. This was not in my plans, at all.”

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