brain

‘My son’s tiny body was wracked with seizures. I stroked his tense, shaking face, whispering his name that he was safe.’: Mom says her son is a ‘miracle’ despite debilitating Polymicrogyria diagnosis

“This moment was one I’d never in my 33 years of anxiety imagined happening to me. I held my phone steadily pointed towards my little boy, in hopes of capturing his every move on video. I was witnessing something I’d never have wished on the worst of enemies. I searched ‘Polymicrogyria,’ ran to the toilet, threw up my breakfast and curled into a tight ball. When I tell friends my son has a condition that causes epilepsy, they respond by saying, ‘at least that is treatable.’”

‘Is it cancer?’ I had to tell my son, ‘I don’t know.’ There’s no treatment. We were told go home and live life.’: Twin brother suffers 2 brainstem strokes caused by a cavernous angioma, mom says it’s made her children ‘kinder, better’

“I had 3 happy, healthy, perfect kids. Until I didn’t. Zach called home from the school nurse with a headache. I followed our standard rule, ‘You aren’t throwing up, you don’t have a fever. Go back to class.’ For 2 days, he told me his eyes and ears felt weird. I told a friend, a nurse, that my son was holding his head funny. Within a minute she said, ‘You need to get him checked.’ I said, ‘Oh ok.’ Then she said, ‘I mean now.’”

‘Maybe she hasn’t discovered her left arm yet?’ My baby was only using her right hand. Something was ‘wrong’ with my perfect, healthy girl.’: Daughter’s Hemorrhagic Stroke misdiagnosed for months, mom ‘beyond proud’ of her despite disabilities

“At her 6-month checkup, the pediatrician casually asked, ‘Does she switch toys back and forth between both hands?’ When I answered no, she said, ‘Oh no. This really isn’t normal.’ In the center of her brain was a burst vessel. This was both shocking and devastating. We were done waiting for her to ‘discover’ her arm. It wasn’t supposed to be like this. This was not in my plans, at all.”

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