Brittle Bone Disease

‘The doctor had tears in her eyes. ‘We can’t say if he’ll make it or not.’ Fractures started appearing in the scans, in every limb.’: Woman births baby with Brittle Bone Disease, ‘My job is to love him well’

“At our 20-week ultrasound, we received the news our son’s femurs looked short, in addition to smaller arms. The kicker was he wasn’t fitting any specific mold. ‘We can’t say definitively if he’ll make it or not.’ I leaned on my faith more than ever.”

‘My boss said, ‘You’re a liability due to your health issues.’ I felt like I’d lost my purpose. I didn’t think I’d make it.’: Child abuse survivor, chronic illness warrior births child with down syndrome, ‘I WILL be the mother my kids deserve’

“We were told, ‘Your daughter has Down syndrome and will need heart surgery.’ I was urged to have an abortion, due to my own health issues. Everyone doubted my ability to be a mother to a special needs child. I was determined to prove everyone wrong.”

‘She was in her bouncer when I heard, ‘CRACK!’ A voice in my head said, ‘Take her, NOW.’ There was more to the story than I knew.’: Baby diagnosed with Brittle Bone Disease, ‘She’s our little fighter’

“It was a Friday afternoon when I got the call. Athena and I were picking out Build-A-Bears. ‘How was this missed?!’ At the ER, the doctor asked, ‘How did this happen? Who took care of her?’ He was checking to see if we had purposely abused her. ‘We need to verify if DHR needs to be involved.’ It broke my heart all over again. They checked for more bruising. I was terrified of losing her.”

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