“I remember sitting on my kitchen floor crying. ‘Most children with this condition lead normal lives.’ My world was caving in. I was a carrier. I caused my baby to have such a horrible condition.”
‘Whatever you do, do not Google.’ Bruises didn’t warrant a trip to the doctor. My brain was boggled.’: Son diagnosed with severe Hemophilia diagnosis, ‘We face every hurdle head-on’
‘I’ve never heard of that.’ The attending physician didn’t know what it was. I don’t think I slept for more than an hour that night. ‘Will he be OK?’: Mom births rainbow baby with CMTC, ‘He doesn’t let his difference keep him down’
“Before I knew it, at least 20 different people were in the room. Doctors, nurses, and students got to see my newborn baby before I did. My husband slowly told me, ‘Honey, there’s something wrong with his leg.’ I’m sorry, WHAT? His skin was purple and black, marbled down his whole right leg.”
