“I remember sitting on my kitchen floor crying. ‘Most children with this condition lead normal lives.’ My world was caving in. I was a carrier. I caused my baby to have such a horrible condition.”
‘Whatever you do, do not Google.’ Bruises didn’t warrant a trip to the doctor. My brain was boggled.’: Son diagnosed with severe Hemophilia diagnosis, ‘We face every hurdle head-on’
‘I don’t see arms.’ The sonographer takes too long rubbing the wand over my belly. Everything goes silent.’: After ‘repeat miscarriages,’ mom births ‘miracle, rainbow baby’ with TAR Syndrome
“We told our family about Nicholas’ lack of arms. ‘Do you think you should keep him?’ That question BROKE my heart. Having to confront the fact others disagreed with me was as painful as my miscarriages. Was I sentencing him to a painful life? People who didn’t know would talk of all the things he’d accomplish. It all felt like lies.”
‘I’ve never heard of that.’ The attending physician didn’t know what it was. I don’t think I slept for more than an hour that night. ‘Will he be OK?’: Mom births rainbow baby with CMTC, ‘He doesn’t let his difference keep him down’
“Before I knew it, at least 20 different people were in the room. Doctors, nurses, and students got to see my newborn baby before I did. My husband slowly told me, ‘Honey, there’s something wrong with his leg.’ I’m sorry, WHAT? His skin was purple and black, marbled down his whole right leg.”
