c-section

‘No eyebrows and eyelashes,’ she said. I hadn’t noticed his lack of hair. She ran her hand across his sweet face. There was a concern.’: Mom learns of son’s rare CFC syndrome disorder, but keeps ‘pushing forward’

“Our midwife came in and hugged me. ‘How are y’all doing?,’ she asked. It was all too much. What did she mean by ‘abnormalities?’ I stopped her and asked. That’s when the rest of the conversation disappeared from my memory. I would NEVER let this define Nolan.”

‘I rose as normal and glanced at the clock. ‘Let me wake her and change her diaper.’ I drop to my knees. 911 operator: ‘Whats your emergency?’ I scream, ‘My baby’s not breathing!’

“I desperately breathe air into my child. Medics rush in. Suddenly, I hear voices, machines. I’m listening for that cry I know. Everything pauses. They wrap her in a soft white blanket, slowly walking towards me as if presenting a gift. I push back, pleading with tears. I beg the doctors to try just a little longer.”

‘I heard him reach the bedroom and scream. ‘There’s something wrong with the baby!’ I grabbed her and started touching her face, opening her mouth. ‘WHAT? How is that even possible?’

“I remember opening my balcony door and screaming. People across the street stared up at my window while Nick ran into the field to help the paramedics find us. I rode to the hospital, holding Jaymie-Leigh wrapped in her Peppa Pig blanket. I just stared, hoping and praying she would just look up and smile at me.”

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