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‘What’s that? It could be something sinister. You might have a tumor.’ I got fired for being ill.’: Young woman diagnosed with Ehlers Danlos Syndrome after countless tests, ‘I was getting sicker and sicker, but with no answers’

“I was sobbing in bed one night angry at God. ‘Why won’t you take the pain away?!’ I had worked so hard despite being unwell, pushing myself to achieve. I got the grades to study music, my true passion, but was too unwell to go! I was gutted. The emergency doctor uttered the word ‘stroke.’ I was in disbelief. I was only 19 years old.”

‘Is this a nightmare?’ We said goodbye, not knowing if she’d recognize us again. Our sweet, perfect girl was dying.’: Mom ‘crushed’ by Childhood Alzheimer’s diagnosis, ‘We spoil her every day’

“5 hours after she was born, they needed life-flighted her to another hospital. ‘Your baby is breathing a hundred breaths per minute.’ I was numb. She stayed on oxygen for two months, but there was still no diagnosis. Her file read, ‘Unknown respiratory issues at birth.’ I felt hopeless for answers.”

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