cardiologist

‘He’s here, he’s breathing, and he has a TON of hair!’ The joy only lasted for a moment. Our son was ready to shake things up at the hospital.’: Mother learns of son’s rare Cornelia de Lange syndrome diagnosis

“There was silence. She smiled, turned off the screen, and said she would be right back. I looked at my fiancé with tears in my eyes. ‘I knew it.’ They told us our baby would have some sort of syndrome, and we had ‘no choice’ but to continue with the pregnancy. I remember feeling angry at that, ‘no choice but to continue.’ As if they had already deemed his life to be unfit to continue.”

‘I felt them again last night.’ I was suddenly a single dad to 4 boys. This wasn’t supposed to happen.’: Man loses wife to Cardiac Sarcoidosis, vows to ‘tell her story’

“We talked a bit, fell asleep. The next thing out of her mouth was a gasp. I shook her, screamed her name. No response. A wave of terror came over me as I fumbled to call 911. A machine violently compressed her chest over and over. They wouldn’t stop until I gave the word. I started to get pleading looks from the doctors. As each excruciating second passed, hope faded. Death enveloped the room. I finally uttered the words, ‘It’s enough.'”

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