“Most children don’t depend on their parents for everything their entire lives. We always worry about illness. He’s nonverbal, cannot walk, has a feeding tube, and recently has been diagnosed with a seizure disorder. But then, I look at Christopher and smile.”
‘We’re so lucky your dad still has his job.’ I don’t know how we’ll do it another day, another week, another year.’: Mom of special needs son says ‘being his caregiver is a whole life job’
‘Who are you? I don’t know you and I’m really scared,’ she said, shaking. She was crying now. I was her baby, her best friend.’: Woman shares painful Alzheimer’s journey, ‘Nothing prepares your heart for the day your mom doesn’t know you’
“That morning, I picked up my mom for a routine dental cleaning. As usual, she was happy to see me. Nothing stood out as odd. She joked with the receptionist about me and walked out the door with a smile. As soon as the sunlight hit her face, she turned to me. ‘You never told me.’ ‘Told you what?’ I asked. ‘Who you were.’ All in a couple of seconds, I realized this was very real. She was terrified and begged, ‘Take me home.’ I soon realized ‘home’ was her childhood house. My mind was racing.”
‘Up until that point, I’d lived a charmed life. Then tragedy struck. It was isolating. But they also didn’t throw a ‘pity party’ for me.’: Man credits resilience for getting him through ‘each of those dark days’
“My life was quickly thrown upside down. The love of my life was suddenly killed in a car accident. I handled it with anger and bitterness. The economy began to crumble. I quickly became the best possible cab driver I could be. Shifts were 12 hours long. I pulled my boots up and reinvented myself. Then everything changed again. The ginger ale sat on the kitchen counter, slowly turning into a bomb. At the exact second Shelly passed the sink, the bottle exploded. I was horrified. What a battle it has been.”
‘Can I give the a tree a hug?’ She tells me her brain is stuck. ‘Why is the sun shining?’: Caretaker of an autistic child insists ‘I am a better person because of her. I see the world in a changed way.’
“I said, ‘Break a leg!’ She got furious and started yelling at me, ‘Why do you want me to break a leg?? She takes things exactly the way they are, what you say is what she hears, and she processes the language just as it’s spoken. Katy has her own unique way of thinking, which I adore.”
‘I knew when it was time you would rise to the occasion and take care of her and of us. And you did.’ Hearing that made it all worth it.’: Nurse reflects on how she has to be a nurse, even when it’s for family
“The night my mother-in-law passed away, everyone was a mess. Emotional, tired and grieving that she had been suffering so long. Even after being a nurse for 15 years, I wasn’t prepared for how it would feel to be the family member in the nursing role. On the way home, I wasn’t ok.”
‘I think I have heartburn.’ He winced, shook it off. ‘As long as it’s not my pancreas!’ We laughed, having no idea.’: Woman loses partner to pancreatic cancer, ‘I walked with him, through life and death’
“As the days passed, he couldn’t eat or sleep. Then came the shocking weight loss. This body I once knew was now all bones and sharp edges. I could see his ribs through his t-shirt. ‘We see a large mass,’ the doctor informed us. I cried silent tears. I could no longer touch any part of him, except his hands. Everything hurt too much. We were no longer laughing. We were hoping for one more day.”
‘Who are you and what are you doing in my house???’ She’d get sad. ‘I feel like I’m in prison.’: Caretaker befriends elderly woman with Alzheimer’s, ‘Just love them, they never forget how to love’
“I would re-introduce myself every 5 minutes. ‘I am your new friend. We are going to spend the day together!’ She would smile. ‘Thank you for being here.’ She’d tell me about her first love and all the trips she’s taken. Then all of a sudden, she’d backtrack. ‘All the men I loved were in the war, and none of them came back.’ She’d forgotten so much, but whenever I’d say goodbye, she always thanked me.”
‘Robin, come sit with me. Right now. Just stop for a minute.’ I didn’t. 8 months later, he was gone.’: Wife loses husband to cancer shortly after giving birth, hopes his legacy will ‘save another drowning soul’
‘”You shouldn’t have come. This isn’t a good place for our newborn.’ Yes, but I couldn’t leave my husband in the ICU alone. ‘Maddie is so little, and you are breastfeeding. I’ll be okay. Take her home.’ He insisted I get some sleep. The next morning, I got the phone call. ‘We will talk when you get here.’ I hung up the phone and said to myself, ‘He has cancer.’ I cried the entire way to the hospital.”
‘I never look like this.’: Mom confesses she ‘forgot’ who she was until her own mother sat her down and ‘made her’ get out her makeup
“The truth is, I’ve forgotten how to be her, and as much as I hate that fact, it’s real. Mothers don’t need empty advice. We need others to care for us. It’s the first step.”
‘I found myself divorced and single at 40, no kids. I didn’t want to wait any longer! As my adoption match fell apart, I fell in love. Life changed overnight.’ Woman takes in special needs stepson after mother’s sudden death
“It felt like a bomb went off in our family. My head was swirling with fear, confusion, doubt. We went from being a carefree couple that traveled to full-time caregivers of a medically complex child. Call it intuition, gut instinct. I had no idea what to do or how to do it, but I knew with absolute certainty I was ready.”
