Celiac Disease

‘She must be dramatic. She isn’t actually sick.’ I must convince doctors I’m not an addict looking for pain meds. I beg to be taken seriously.’: Woman battling Celiac Disease explains ‘this isn’t just a food allergy’

“I was an all-star cheerleader. From the outside, I seemed perfectly healthy. After that first week in the hospital, I was discharged and told this was a ‘fluke thing’ and I needed to go on a ‘low-fat diet.’ Soon, the hair loss, stomach pains, bruises, and infections started. I was 90 pounds and miserable.”

‘You’re imagining the sensation.’ My right hip snagged. My leg buckled beneath me. Pain shot into my thigh like electricity.’: Woman finally diagnosed with Ehlers-Danlos Syndrome, ‘They didn’t believe my pain’

“My doctor asked, ‘Are you having substance abuse issues?’ I was taken aback. I told her no. I was very hesitant to take any medications, much less for pain. ‘Leave a urine sample on the way out.’ She ran a full drug screen without telling me. It came back clean, but it didn’t matter. She didn’t believe me. She didn’t believe my pain. I was heartbroken.”

‘I had a ton of excuses as to why I couldn’t, but each excuse and circumstance was eliminated. I was quickly immersed in the emotional roller coaster ride that is ‘foster care.’: Young women adopts relative’s premature baby and all of her medical needs

“A nerve injury in her small intestine has caused quite the turmoil in her little body. Every day she complains that her belly hurts. Every day she retches and throws up. This has become our normal. Foster care is hard. Medical needs are hard. But I’m here to tell you that these kids are worth every single sleepless night.”

 Share  Tweet