CF

‘I probably won’t outlive my sister or may not be able to see my children grow up. ‘Do you feel like a burden?’—Yes, I do’: Woman with Cystic Fibrosis details journey, ‘If you search for the silver living, you’ll always find it’

“I had no energy to move, let alone scream. My parents had nothing to be concerned about. All was a mystery. I hid behind the paper and the little book in my wardrobe no one knew existed. I was fine about everything and I sort of still am, but I don’t want to die yet.”

‘You won’t live past 15 years old.’ I never stopped believing in myself.’: Man with cystic fibrosis urges ‘don’t take your time on this earth for granted’

“I’ve sat in my bed asking, ‘Why God? Why can’t I breathe like everyone else?’ I’ve wondered if I should even try to build a career, friendships, or have love in my life because I’m going to die. Then I realized I will never be able to control the cards I’ve been dealt, but I can make the decision to never stop pursuing my dreams.”

‘I won’t let you die, Gunnar.’ I was heading towards end-stage illness, and an end to my fight.’: Son of quarterback, Boomer Esiason, advocates for others with cystic fibrosis, ‘I now live the miracle’

“I was 22 years old and feeling lonelier by the day, as my disease progressed faster than I could have imagined. One day in particular, I broke. I cried and cried. My mom saw it happening through the kitchen window and rushed to me in the driveway. She hugged me. I still think about that hug.”

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