CF

‘I won’t let you die, Gunnar.’ I was heading towards end-stage illness, and an end to my fight.’: Son of quarterback, Boomer Esiason, advocates for others with cystic fibrosis, ‘I now live the miracle’

“I was 22 years old and feeling lonelier by the day, as my disease progressed faster than I could have imagined. One day in particular, I broke. I cried and cried. My mom saw it happening through the kitchen window and rushed to me in the driveway. She hugged me. I still think about that hug.”

‘It’s time to consider a lung transplant.’ I was terrified of dying before I’d started living.’: Young woman with Cystic Fibrosis fights ‘to live the fullest life I can, in the time I am given to live it’

“My parents comfort me by saying, ‘We will get through this.’ I needed oxygen pumped into my nostrils at all times to breathe. I was afraid I was dying. I’ve seen videos where they interview elderly people on their deathbeds who are asked what they regret in life. Most people regret not having lived passionately, fulfilled and happy. I believed I would be one of them if I didn’t make a change.”

‘Are you scared?’ she asked. Breathless, I whispered to my mom, ‘No. It’s time to rally.’ I was so close to death.’: Woman with cystic fibrosis ‘in awe’ after gifted new lungs on verge of death, ‘the kindness of a stranger saved my life!’

“The meds had stopped working – time was running out. The call came at just the right time. I remember doubling over, nauseous with the news I’d just received: ‘They have a match for lungs.’ I needed to be transported to Boston IMMEDIATELY. I crouched down by my hospital bed, struck with the magnitude of the situation. As prepared as I was, nothing could get me ready for this moment. I couldn’t catch my breath.”

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