challenges with lupus

‘So she’ll always be sick?’ I leave the office with an answer but no cure. ‘I’m not dying. I’m just 16 and past my prime.’: Chronic illness warrior battles lupus and fibromyalgia

“’Maybe if I drank bleach,’ I think. I feel so dirty, tired and stiff. ‘Maybe if I turned inside-out and scrubbed my veins out with soap.’ Surely the disease would be eradicated. I’m supposed to find out today. I tap my foot. ‘Remember to breathe, you have to breathe, just breathe.’ Dr. Box settles into his rolling chair. ‘So she’ll always be sick?’ ‘Yes, but we caught it early.’ Yesterday, I dropped my hairbrush. I couldn’t finish. My hair is still knotted in the back. Last week, I passed out briefly, stepping out of the shower. And this was an improvement.”

‘I didn’t feel sick, I didn’t look sick. Yet, my body was attacking itself AND my baby.’: Woman’s ‘leg swelling’ dismissed as ‘old age’ at 33, later diagnosed with Lupus

“My family and I were on our way to a cruise vacation when my doctor called, asking me to come in. ‘I don’t think you should go on that vacation,’ he said. What the heck?! Oh no, I was going on vacation! Then, he gave me a quick and dirty update on my situation. I felt like I was in a dream state. I started to cry. I pride myself on being very strong and independent, but in that moment, I was TERRIFIED. I wasn’t sure I’d be around to see my children grow up.”

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