“Her skin was pulled so tightly that her eyelids had flipped inside out. We were informed her limbs could suddenly detach on their own. Every day, we faced a new challenge.”
‘I rushed to the hospital. ‘I’ve never seen anything like this,’ the surgeon said. Our pregnancy checkup had gone well. There was never a reason to believe something was wrong. Our excitement turned to disbelief.’
‘Home was a safe place for Brian in 2008. Whatever happened in school, stayed in school. Not now.’
“Brian walks across the cafeteria, minding his own business. Suddenly, his feet slide out from under him. The tomato soup goes up in the air and comes down on his lap. He’s so embarrassed, that when he stands up, he doesn’t notice Mark filming.”
‘Her skin hardened within seconds. It began to split. My husband’s silence scared me.’: Mom says daughter born with Harlequin Ichthyosis is ‘beauty in the purest form’
“He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’ Broken is the only way to describe the feeling as they placed her in my arms. They had never seen anything like this. She was fine; everything was perfect, and then it wasn’t. But Anna was meant for me, and I for her, and together, we will show the world what true beauty is.”
Misbehavior: Your child’s desperate call for help! Real solutions for better behavior at school and at home.
Parents, our children’s “misbehaviors” are symptoms of a much deeper problem that can’t be ignored any longer.
