CHD

‘Unless you have a sick kid, you don’t understand. I wish I only had normal fears. I know any breath could be her last.’: Mom of CHD baby worries during Covid 19, ‘Your fears for your child’s health are NOT bigger than my fears.’

“Her appointment was flat out canceled, and her developmental checks were rescheduled and then canceled. For a normal child, that would be no big deal. For a child who just had major surgery that did not fix everything, those appointments are everything. I wish I could be ignorant like you.”

‘If you want to go, we will let you. If you want to fight, we’ll fight forever.’ She didn’t want us to suffer.’: Mom loses baby to Pulmonary Atresia, Intact Ventricular Septum, ‘She made heaven so much bigger’

”I asked my Gramma once, ‘Why do day-lilies only last for one day?’ She just smiled at me and said, ‘Well sweetie, when you are that beautiful, I guess one day is enough.’ We woke up and headed to our baby’s room. We were greeted in the hallway by one of her doctors. ‘I don’t think she’s going to make it through the day.’ We promised to do whatever she wanted.”

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