child epilepsy

‘My best friend said, ‘You’re too depressing to be around. All you talk about is your pain and sickness. You need to hold it all in, or I won’t be your friend anymore.’: Woman written off by society finds ‘unconditional love’ in chronic illness community 

“For 8 years, I couldn’t get the medicine I needed because doctors suggested I was complaining about nothing. They dismissed me with, ‘It’s all in your head.’ I became an expert at denying my own pain. I resigned from my job. Being sick was not something people wanted to hear about.”

‘This child will be a burden to you.’ Her chocolate eyes shot through my screen. ‘Oh, crap.’ A feeling washed over. ‘There you are, my child.’: Woman adopts girl with spina bifida, epilepsy

“A feeling washed over me. The exact same wave that washed over when they placed my biological children on my chest in the delivery room. ‘There you are, my child.’ Stroking my cheek, I felt her 28 pounds snuggle into mine. ‘Mommy, I’m so glad you found me in Armenia. I missed you even when I didn’t know you.’ She fed my soul, and she doesn’t even know it.”

‘What happened, buddy? What happened?’ I laid down next to him, held his hand. An eerie calm came over me.’: Father pleads ‘hug your kids, don’t work too late’ after regretting ‘missing out on things’ with twin son who suddenly died in his sleep

“The evening before was normal. He was healthy and engaged. We had kids over for dinner. We all jumped on the giant trampoline. He got bossy with the other kids and started telling everyone they were playing the game wrong. I pulled him aside. I was stern with him. Too stern in hindsight. And I made him cry. It’s one of the last interactions we had, and I’ve beaten myself up for it. I can still see the tears rolling down his face. ‘But you’re not listening to me. No one listens to me.’”

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