child seizures

‘I heard an odd noise coming from my son. I looked over to see orange drool trickle from his mouth, his body rhythmically bouncing.’: Mom fights for answers to son’s undiagnosed seizures, ‘We will never stop trying’

“We had no cell service. There were no other vehicles on the road. We were alone, on a deserted highway, with our child who was quite likely dying, and we had no idea what to do. Nobody wakes up one day and thinks to themselves, ‘Today is the day my world will explode. Today everything is going to change and I’ll never get over it.’ But that’s exactly what happened.”

‘We begged her to let go. She kept fighting to stay with us. ‘We’ll be together soon. You need to go home,’ we said.’: Mom says daughter suffering from CHD ‘passed peacefully in my arms,’ is ‘finally at peace’

“We went to see Cora for the last time. I washed her hair and gently cleaned her body with a washcloth. I dressed her in our favorite headband and swaddled her tightly. Her sister gave Cora a kiss on her forehead. We told her to say goodbye. ‘Bye bye, Baby Cora.’ My mom took our eldest away so she could pass with my husband and I alone. She was so beautiful, looking at us with such deep love in her eyes.”

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