“I thought a diagnosis would put an end to the grief. Turns out, it just opened up the door for all the other stages to creep into my heart.”
‘She is the only person I know of with this mutation.’: Mom shares daughter’s journey with rare Coffin-Siris Syndrome, ‘We are the lucky few’
‘We can’t see any arms.’ I was chasing shadows and clinging to hope there was a mistake.’: Mom gives birth to son with TAR Syndrome, ‘No arms? No problem!’
“Why does EVERYTHING have sleeves? The feeling of being inadequate hit me like a freight train. I didn’t sleep. I didn’t eat. ‘How are we supposed to raise a child with no arms?’”
‘I knew AS SOON as he walked into the room.’ People think he’s possessed.’: Mom advocates for son with nonverbal autism, ‘Love needs no words’
“’His needs are quite severe.’ I always had a smile on my face, but each time I broke a little more inside. But I’m not ashamed of him and NEVER will be.”
‘Try to get him breathing!’ Experts said he’d remain in a semi-vegetative state for the rest of his life.’: Mom of near-drowning victim preaches water safety after ‘preventable accident’
“Leaving the bathroom remains the biggest regret of my life.”
‘I was at work when I noticed a strange feeling and excused myself to the restroom. In shock, I found crimson red trickling down my legs.’: Mom births preemie rainbow baby with autism
“I went to stand up, and blood poured down my legs and all over the floor. I remember almost fainting; my husband called 911 and an ambulance rushed me to the emergency room. To our surprise, we saw a baby bouncing around on the screen of the ultrasound. The doctors were baffled.”
‘They had better things to do than feed him.’ He was blue and resembled an alien. ‘OF COURSE, we’ll take him!’: Foster parents adopt shaken baby survivor
“’We have a 2-month-old baby boy, failure to thrive.’ I had never seen anything like him. My husband had tears in his eyes as the caseworker filled us in. They didn’t expect him to do much. That sweet baby boy had given up, but we were not giving up on him.”
‘But it doesn’t run in our family!’ I’m too young for this. Is it really happening twice?’: Brother with Down syndrome helps parents accept son’s diagnosis, ‘We had so much hope because of him’
“The phone call came early afternoon. I should have known something was wrong. ‘Excuse me? I’m not even supposed to be at risk.’”
‘My child sleeps in my bed instead of hers. We decided co-sleeping is best for our family. You weren’t there.’: Mom of autistic daughter urges family and friends not to judge
“You judged the accuracy of my child’s diagnosis, it hurts. Dear family, there is something you should know. You aren’t there; but I am.”
‘Today my little sister received her school yearbook. She was intentionally left out due to her differences in ability.’: Sister to student with Down syndrome advocates for inclusion, ‘There is no excuse’
“Since the 2,500+ students and faculty didn’t get the honor of seeing Glenda’s yearbook photo, at least the internet can.”
‘At 10 months old, he weighed over 35 pounds. I began keeping food logs. ‘Does this justify the weight gain?’: Mom births baby with obesity disorder, autism
“Immediately after birth, he began growing rapidly. He grew almost 3 inches and 8 pounds in 7 weeks. We were told Joshua’s condition is ‘without a doubt rare and genetic.’ Everywhere we went, people stared. Josh just wants to be everyone’s friend.”
