“A nurse grabbed me, saying, ‘Pray for your son NOW, and pray he makes it.’ She asked me if I needed to leave the room. ‘No, I’m NOT leaving my son.’ Every day I felt like I was dreaming. I don’t know how I was still standing.”
‘I have to remove his top lip.’ It had turned black. Half his face was gone, it reminded me of a zombie.’: Boy battles leukemia, mouth infection, now in remission and mom says ‘we still continue to trust in God’
‘You had the baby 15 days ago. You’re in the hospital.’ Was he kidnapped?’: Mom births baby in medically-induced coma after frightening flu symptoms, ‘They knew I was dying’
“I remember multiple vivid dreams of violent rape. As I woke, my ‘dreams’ transitioned to reality. The sorrow I felt was indescribable. I was devastated I’d missed those precious moments after birth. I wept, begged the doctors, ‘Please downgrade me out of the ICU so I can meet my baby!’ FINALLY, after 24 days in the hospital, I met my precious son. I smelled his skin. I’d almost died, and was now reunited with him.”
‘What did I do wrong to cause this sweet blonde-haired, blue-eyed boy to suffer like this?’ He woke up so smiley that morning. My husband and I were silent. ‘It’s time,’ the team said. The doors shut behind him.’
“Ten minutes went by…then 30 …then 45. I was in a total panic. Instead of the screen showing he was waking up from anesthesia, it said he was still in the O.R. There was a look of concern in his surgeon’s eyes. ‘For some reason, half of his skull expanded faster than the other.'”
‘I put you in your mom’s arms so you could be snuggled while you drifted off to sleep. I hid behind the curtain and shed silent tears. I still hear the echo of, ‘I’m so sorry, but he is gone.’: Nurse recalls ‘absolute honor’ of caring for CHD patient
“I remember every single detail about this day. I knew what I was coming into, but in no way was I prepared for it. Your nurses before me had gotten you so handsome, dressed for your family. You looked so small in that big bed.”
‘It was the middle of the night when I got this call. I sat in the basement, frozen and in shock. Please tell me this is just some virus that will go away next week.’
“We also noticed he had a bruise on his back from one of his Nerf gun battles that wasn’t going away. Nothing crazy, nothing that made us extremely worried at the time.”
‘He looked at me screaming, helpless because he felt they were torturing him. All mommy could do was hold him tight, but not stop them. The room caved in on me. I wasn’t ready.’
“I took him to his pediatrician with no knowledge of what was to happen later that evening. The doctor walked in, looked at his stomach bulging out on the left side, and told me to go straight to the Children’s Hospital.”
‘To the man in 2D. I don’t know you, but I imagine you saw us. I was pushing a stroller, had a diaper bag on my arm and was also lugging an oxygen machine for my daughter.’
“Not able to hold back tears, I cried my way up the aisle.”
‘We just don’t know right now. We will have to wait and see.’ WHAT?!? In less than 24 hours, my sweet, active, PERFECT baby boy was paralyzed from the neck down.’
“As the doctor was trying to tell me it was ‘just a virus,’ I looked at her and said, ‘But he can’t move.’ She suddenly stopped and looked at him a little closer. After prompting him, he still did not move. I saw the panic rush across her face. My entire world collapsed in front of me.”
‘He tried committing suicide by hanging. By the time he was found, he had no sign of life left in him. ‘No, no this can’t be happening. This can’t be real!’’
“I went home to an empty house that night and that’s when the nightmares began. My heart is racing. I’m panicking and crying.”
‘He started to vomit a green color. Nurse after nurse continued to say everything was ‘normal.’ Even this green bile? ‘Yeah, that’s normal.’: Mom births baby with Hirschsprung Disease
“As his parents, we knew something was off. We were scared, and it was not being validated by anyone.”
