chromosome disorder

‘The doctor said, ‘If she’s born, she will look scary and be a burden.’ My husband questioned my choice. I decided to walk this path alone.’: Woman births baby with Edward’s Syndrome, ‘Every moment is the greatest gift’

“‘Hello?’ I answered the phone, recognizing the phone number of my OB office. I can’t tell you how the rest of the conversation went because I was absolutely in shock. I heard the words ‘incompatible with life.’ I was encouraged to terminate the pregnancy and was told if born, she would look scary and would be a burden on our family.”

‘You’re lucky he didn’t die in his sleep. He is 1 in 6 billion and will be bedridden for life.’ I clenched my husband’s hand in disbelief, tears welling in my eyes.’: Mom praises medically complex son, ‘He is our little heart warrior’

“He was lifeless and pale. The clock was ticking. All we could do was pray and hold his little hand. Sitting beside his hospital bed, 3 genetic doctors in white coats rushed in. ‘Can we go to a private room to talk?’ I walked down the hallway in a fog. ‘We were wrong. It’s severe. He will never live independently on his own.’ Soon after, he had a stroke and began seizing up. This was the worst-case scenario. It was really happening.”

‘Can I still use the tickets even though my baby passed?’ Their response: ‘No, your guest must be present.’ My heart broke into a million pieces.’: Mom loses baby girl to pneumonia, ‘She isn’t in pain, she is free’

“The day she died was the day we got the email that we had won the tickets. I asked if we could still use it for my girls, even though one was now my angel baby. It felt like the perfect thing to honor and remember her. A simple no would have been okay with me, but their words felt like a stab to the heart. The bear lost its meaning to me.”

‘My wife must regret spending her life with me. If she met someone different, she’d have perfectly healthy children,’ I told myself. ‘He is one of 34 people known to have this.’ My heart sank. ‘What? In the country?’ ‘No, in the world.’

“I remember thinking, ‘Maybe we just aren’t the best of parents.’ Little did I know my wife was secretly researching and had discovered a condition. One day, she showed me a video. My heart sunk. I felt dizzy. Straight away, I knew this was what our boy had.”

‘Our PE coach pulled me aside. ‘Your little buddy is about to be put on an adoption website.’ I told her, ‘We’ll adopt him!’: Teacher unexpectedly adopts student with special needs

“Without thinking, the words literally just came out of my mouth. I remember calling my husband. ‘There is paperwork in the printer I need you to look at when you come home. I want to adopt a little boy from school,’ I told him. ‘Are you sure?’ ‘I am.’ ‘Then what do I have to do to get the house ready?’ We all agreed, we were doing this.”

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