chronic autoimmune disease

‘So she’ll always be sick?’ I leave the office with an answer but no cure. ‘I’m not dying. I’m just 16 and past my prime.’: Chronic illness warrior battles lupus and fibromyalgia

“’Maybe if I drank bleach,’ I think. I feel so dirty, tired and stiff. ‘Maybe if I turned inside-out and scrubbed my veins out with soap.’ Surely the disease would be eradicated. I’m supposed to find out today. I tap my foot. ‘Remember to breathe, you have to breathe, just breathe.’ Dr. Box settles into his rolling chair. ‘So she’ll always be sick?’ ‘Yes, but we caught it early.’ Yesterday, I dropped my hairbrush. I couldn’t finish. My hair is still knotted in the back. Last week, I passed out briefly, stepping out of the shower. And this was an improvement.”

‘There’s no way to cure it. The pain can be crippling. It can also cause infertility.’: Woman suffering severe endometriosis undergoes 10 surgeries, says ‘no wonder I had that miscarriage last year’

“‘Does the pain shoot down the back of your legs?,’ my friend asked. ‘Yes. It feels like knives carving me out from the inside. But my doctor doesn’t believe it’s worse than typical period cramps.’ I made an appointment with what felt like my millionth doctor. Narcotics didn’t work, CBD didn’t work, ibuprofen didn’t touch it. I have kids and work and life to live, I can’t be laying down all day every day. I didn’t want to allow the pain of endometriosis to make me a bitter person.”

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