chronic illness

‘Every time I gave birth, I awoke the dormant beasts inside me.’: Mom of 3 shares journey to Ehlers Danlos Syndrome, Lupus diagnoses

“I started wearing sunglasses indoors. My hair was falling out in chunks, my gums bleeding. Sounds hurt. The very smell of air made me sick. I was a shell of myself, withering away, barely hanging on. But then I thought of my little girl. She was so small, not even talking yet. How would she remember me? Who would teach her to do her hair? I had to stop planning my goodbyes, and start fighting.”

‘Every morning I trudged, syringe in hand, to get stabbed in the abdomen on an exam table while my classmates grabbed Starbucks. I began silently screaming, ‘Why me?’: 19-year old diagnosed with IBD, ulcerative colitis advocates for change

“I was warned about the freshman year dorm life and told where to go for mental health counseling if exams became too stressful. I was not told what to do, how to continue, or who to turn to if I was suddenly forever ill.”

‘It shouldn’t hurt that bad.’ I was weak, lazy. A complainer. Only 15, doctors had already given up on me.’: Woman diagnosed with Lupus after years of misdiagnoses urges ‘find someone who will listen’

“I could not find my words. I slurred my speech and often got lost driving to places I’d driven to a thousand times. My doctor finally explained pregnancy posed ‘too much of a risk to my life.’ But come December, I saw two little lines on a stick. This little one was determined.”

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