“I changed my name and perfected my accent. No one knew about my past. I exercised, dieted, tanned, toned, concealed, and accentuated—all for attention. Then I noticed muscle weakness. At that moment, I knew.”
‘I was called a ‘big-nosed Jew.’ I NEEDED to fit in. When I got my diagnosis, I was in denial. My disability was the first thing people saw.’: Woman with muscular dystrophy finds self-acceptance, ‘I’m unapologetically me’
‘Mom, I want to join cross country!’ She looked confused. If your child had a life-threatening disease, you’d hesitate too.’: Runner with cystic fibrosis follows dream, ‘Giving up wasn’t an option’
“Who’d believe a little girl like me with such an evil disease would be SO GOOD. My mom called my dad and said, ‘Your daughter is winning, and not just by a little!’”
‘The doctor said, ‘It’s just teenage girl stuff.’ I was living with everyday pain as if it were normal, forced to accept feeling this way forever.’: Young woman shares journey to Ulcerative Colitis diagnosis, ‘My life is just beginning’
“I was 21, almost done with my senior year of college. These were supposed to be the best years of my life, yet every day I felt sick and exhausted and no doctor could tell me why. I was told it was ‘all in my head.’ I lost friends because no one could understand. Soon, I was withdrawing from my semester from a hospital bed.”
‘What have I done to deserve this?’ I’d wake up hoping the drugs and alcohol had killed me in my sleep. The pain was unbearable’: Man with Crohn’s disease celebrates 8 months sober
“At age 20, I had two feet of my small bowel removed. I’d be straining my stomach acid out. I didn’t tell anyone about how much it was affected my mental health. I started drinking in the daytime. I wanted to end my life.”
‘Just wait until he sees you in the hospital. He’ll definitely run.’ I never thought he’d love me back. He held my hand and took care of me.’: Liver transplant recipient shares powerful love story
“As I stood in front of him, he said my scars showed my strength. I couldn’t believe it. For so long, I’d let my illness make me feel like I deserved less. I realized I could do anything with him by my side.”
‘Where’s the nearest bathroom?’ I had to plan an ‘escape route’ if things went south. I went home defeated, but tried to do life as normal.’: Man with ulcerative colitis urges others to ‘choose joy and love’
“It wasn’t until the first few times I completely crapped my pants in public I started taking my illness seriously. I blacked out, screaming, ‘Help me!’ Something wasn’t right. I had to take back the life I’d lost.”
‘The doctor said, ‘Something is brewing, but I just can’t put my finger on it.’ I went from a ‘migraine’ to blacking out for two months.’: Teen battling chronic illness urges ‘let the worst inspire the good’
“I spiked a 108-degree fever. I was stripped naked, covered with cold cloths, and had fans blasting my body. Soon after, I went psychotic. Nothing I said made sense, and everything had a twisted meaning. HGTV sent me into full-blown panic.”
‘THIS is my wake up call. I took charge of my health once and for all. NO MORE dismissive doctors being the drivers of my journey.’: Chronic illness warrior advocates for herself, ‘I can only control my attitude’
“I never thought the ‘pesky problems’ would become an illness. I felt like I was going CRAZY. No one believed me! I can’t control my circumstances, but I CAN control how I handle them.”
‘You’re extremely complicated.’ My doctor apologized profusely. After a decade of being told it was in my head, my pain was real.’: Woman battles chronic illnesses, ‘I’m still here and still fighting’
“I was constantly told I was a hypochondriac. ’Just drink more water.’ But the pain didn’t go away. I looked in the mirror and realized just how sick I was. I barely recognized myself.”
‘This isn’t living. It’s merely surviving.’ I was totally bed-bound. I was a shadow of the person I used to be.’: Woman with Chronic Fatigue Syndrome says ‘I appreciate every single second’
“The apartment above mine had a leak. My bedroom was full of black mold. They ‘cleaned’ it by painting over it. I gave up. 2 months later, I couldn’t get out of bed. I desperately searched for answers.”
