chronic pain

‘Did you think we were ‘lucky’ to stay in bed while you go to work? Reach out to us.’: Fibrodysplasia Ossificans Progressiva warrior says, ‘Check on the people you know who have to stay home for disabilities’

“How have you viewed their lifestyles? Are you already starting to get bored at home even though it hasn’t been that long yet? Think of those who were already isolated away from society, and those who will continue staying inside long after the pandemic ends.”

‘I watched friends celebrate, while I was robbed of living life. The Internet is a blessing and a curse.’: Woman with Cystic Fibrosis gives tips on how to survive quarantine, ‘The limits are endless’

“One issue a lot of people face is in their time of solitude, they may be confronted with the fact that being by yourself is frightening. Your mind needs to become comfortable being alone. There will be no distraction. Your inner-monologue will inevitably be louder and more present than it ever has before.”

‘I have no idea what that is.’ He knelt down while I was on the toilet. The color left his face.’: Woman battles postpartum depression, degenerative disk disease, ‘I made the decision to change my attitude towards myself’

“When the doctor came in, he immediately saw the huge chunk of flesh. He looked extremely shocked. I was in the most pain I’d ever been in my life. It honestly felt worse than giving birth. The doctor said, ‘Okay, I’m going to gently pull this out of you and figure out what we need to do next to get whatever that is out.’ Everyone’s face was of shock.”

‘I vividly remember my husband saying, ‘Babe, it’s time!’ I was AT LEAST 125 pounds overweight. I could barely walk up a flight of stairs.’: Couple join forces to battle obesity together

“I’d tried to ‘diet’ like everyone else, but it just never worked. I ate and over-ate for every reason: to celebrate, to mourn, in boredom, in spite. I was insulin resistant, one Coke away from diabetes, had sleep apnea, PCOS, and lived in chronic pain. I was living life overweight and completely miserable. I was sick and tired of being sick and tired.”

‘No cure? Like forever?’ I’ve been shot in a drive-by shooting, and I’d still take that pain over Crohn’s. I was so angry.’: Young woman learns to live with invisible illness, ‘It’s not the end of the world if you have to pull over, or ruin a pair of pants’

“Suddenly I could not keep any food inside of me, from either end. I was losing weight fast. The weather was nice so my boyfriend and I went to a restaurant on the waterfront for dinner. Afterwards, he took the long, scenic way home. I was in intense pain and needed to get to a bathroom. We finally arrive and he insisted on walking me to the door, not realizing I was ready to sprint. The minute I shut the door behind me, I projectile vomited all over the entryway. I became a homebody. I was accused of things like, ‘You just want pity. You’re lazy.’”

‘I wouldn’t mind if I didn’t wake up.’ I was starving for love, I wanted to be someone’s whole universe.:’ Young woman with Borderline Personality Disorder describes issues with love and boundaries, says she is fighting and working on ME’

“I started crying a lot and cutting myself. I began smoking cigarettes and drinking. I was stoned all the time. I still missed my father. Every time I saw him in town, he walked away. He ignored me, pretending I didn’t exist. And he still does, and has for 11 years.”

‘This is clearly a case of anorexia. You’re a teenage ballerina refusing food.’: Woman with MALS is misdiagnosed for 20 years, ‘I was now convinced. They were doctors. They had to be right, right?’

“For as long as I can remember, I’ve been nauseous. I had lost 40 pounds. I started to find that the harder I worked, the more stamina I lost. The weaker I got. My body would physically swell. Then the horribly loud and embarrassing belching developed. ‘I really don’t think you need these tests. I believe your symptoms are psychosomatic.’ The doctors all told me it was anxiety. It was ‘in my head’ and I needed to ‘push past it and challenge myself.’ I would remain misdiagnosed, dismissed, and passed off, for another full year.”

‘Did yoga do this to you?’ I woke up seeing double. Things took a turn. ‘I know it’s a lot to take in.’ I was shocked.’: Young woman comes to terms with multiple sclerosis diagnosis, ‘I won’t let this hold me back’

“I remember sitting in the waiting room. I lost all control of myself and burst into tears. What if the MS diagnosis was wrong? It felt wrong! I just wanted to opt-out of this, but there was no way. Still crying, I signed my name. All I felt was a little pinch before I went completely numb.”

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