chronic pain

‘Miranda, stop it. You can’t be in that much pain. You’re being a killjoy. Knock it off.’ I was popping Advil. I lost all feeling in my leg.’: Teen battles Ewing’s Sarcoma after being written off, ‘I am a survivor, not a statistic’

“I was 15 and no one took me seriously. One day, the neurologist came back in and said, ‘Miranda, there’s no easy way to say this. We found something in your spine.’ Panic. Blackness. I nearly passed out. I was treated without any consent, which still haunts me to this day. I was hallucinating for 36 hours straight.”

‘I kept getting multiple UTIs. A male doctor asked, ‘Do you think the pain might be ALL IN YOUR HEAD?’ I felt mortified.’: Woman with chronic urinary tract infections urges ‘you are not alone’

“I’d receive a 3-day course of antibiotics and be sent on my way. It would clear up, but come back with vengeance. I was told it was ‘just because I was WITH my boyfriend.’ Fair enough, sex can be a cause, but what did other people do? Stay single for the rest of their life? I was at a loss. All the doctors suggested I was exaggerating.”

‘I was choking on my own saliva. I thought my life was over. Alex was laying on my face crying and I could feel his tears running down my face.’: Autism mom with lupus describes difficult journey, ‘The thought of not being with him haunts me’

“One by one, I will lose all ability to speak and move. I will lose mobility at an age that is way too young. It will take away from the joy I share with Alex, which is already limited and unfair. In the worst part of my life when I was physically sick and could barely walk, I was given the greatest gift of my life.”

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