“I was going through customs when I got pulled into secondary screening. I didn’t know why. I sat in a locked concrete room and was told all my wrong-doings and mistakes and what my options for consequences were. I had to leave the country.”
“I was literally watching myself decay. I couldn’t stand up to get a glass of water without blacking out. I felt judgement in every public restroom I threw up in. My boyfriend of 3 years, the man I planned to marry, broke up with me. I was ‘too sick.’ It all happened so quickly. I went from helping children get off of feeding tubes, to needing one myself. I spent the majority of my hospital admission sobbing, grieving the life I’d walked away from.”
“I took a bad tumble off a horse when I was a kid. My greatest fear was that I’d awaken from anesthesia – and realize with sinking certainty I had made a horrible, irreversible mistake.”
“I am not a fan of public restrooms but knew I would be on the road. That ‘smart’ decision changed my life forever.”
“She had only ever seen once in her career. My world completely stopped. I had to quit all my activities. I was separated from everyone. And just when I thought there might be light at the end of the tunnel, we got more life changing news. I bet you’ve never heard someone wanting to go to school so badly, but I did. I just wanted to feel normal again.”
“What will happen to my health in the years to come? Will my condition gradually worsen? Will I become more and more restricted in my activities? Will I be able to support myself? Will I be able to live independently or will I become increasingly dependent on my family?”
“I’ve learned that the burden is on those who are chronically ill to make the invisible visible to others.”
“I’ve never seen a piece of needle that’s broken off and left in someone’s spine. Never seen it. Never heard of it. It’s outrageous,” her attorney said.