chronic pain

‘I began purchasing baby formula for myself. ‘How could this have happened?’ I felt my boyfriend distancing himself out of fear.’: Young woman diagnosed with rare Elher’s Danlos Syndrome

“I was literally watching myself decay. I couldn’t stand up to get a glass of water without blacking out. I felt judgement in every public restroom I threw up in. My boyfriend of 3 years, the man I planned to marry, broke up with me. I was ‘too sick.’ It all happened so quickly. I went from helping children get off of feeding tubes, to needing one myself. I spent the majority of my hospital admission sobbing, grieving the life I’d walked away from.”

‘Graduating isn’t possible.’ My body was shutting down. But I was going to get my degree one way or another.’: Woman finds ‘strength, faith’ among tumor discovery and multiple chronic diagnoses

“She had only ever seen once in her career. My world completely stopped. I had to quit all my activities. I was separated from everyone. And just when I thought there might be light at the end of the tunnel, we got more life changing news. I bet you’ve never heard someone wanting to go to school so badly, but I did. I just wanted to feel normal again.”

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