chronic

‘Bring me breakfast in the morning if we’re still here,’ joked the doctor. The treatments were painful, I tried to be brave.’: Woman describes her journey with Complex Regional Pain Syndrome, ‘I never had a childhood, but hope I can have a good adulthood’

“I was always fragile. When I wasn’t sick, I was injuring myself. My skin would turn purple and red with spots, and everything burned to the touch. I was probed with questions and faced with students’ and faculty’s disbelief. ‘You don’t look sick.’ Using the school’s only elevator resulted in harassment.”

‘It can’t be bad, you’re young. You look fine.’ I questioned whether my symptoms were in my head.’: Single mom diagnosed with rheumatoid arthritis, ‘I don’t know what tomorrow has in store, but I’m ready to fight’

“I went from busy full days of work to barely handling the commute. I struggled to keep up with other moms my age. Misconceptions such as, ‘Young people can’t get it,’ and ‘You look totally healthy,’ infuriated me. It’s not just a disease for the elderly. I wasn’t fighting only for myself, but also my son.”

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