cleft lip

‘Excuse me, my child has a question about your face.’ Others pulled their kids away like I shouldn’t be looked at.’: Woman with Craniofacial differences reminds us to use ‘kindness’ to approach uniqueness

“In middle school, kids started to stare and ask, ‘Why does your face look smooshed? What’s wrong with your nose?’ My mom would tell me how pretty I was and I’d always say, ‘You’re my mom, you have to say that.’ I’d spend so much time buying cuter clothes, different makeup, more jewelry to overshadow my face. But when I stripped it all down, my confidence was gone.”

‘What? No hands?’ My Dad was minutes away from picking my husband up. The Universe chose me to be Ivy’s mom.’: Mother learns of daughter’s limb difference, refuses terminating pregnancy because ‘she was ours to love, protect’

“My husband firmly, passionately said to me, ‘I’ll do whatever I have to do to take care of her. I’ll build her anything. I want her. I’ll do whatever it takes. I’ll take care of her for the rest of her life.’ He was right. She saw me and said, ‘Yes. I want her. I want HER to be my mommy.’”

‘IT’S A GIRL!’ Suddenly I hear the words, ‘What about the cleft,’ and then deafening silence.’: Mother discovers shocking diagnosis after daughter’s birth

“My baby’s face was still hidden. I shot straight up, and that’s when I saw my baby girl for the first time. The world stopped. ‘Babe look…’ All I heard was silence. ‘Babe look,’ ‘babe look.’ My mom was screaming at my husband. His eyes were glazed over. ‘Everything’s okay, she’s perfect and she’ll be okay.’”

‘What does a baby’s heart look like at 18 weeks?’ I knew something was wrong. But Tad’s father continued to say, ‘Don’t worry until we have to.’ So I tried my best not to.’

“‘He is sitting Buddha style facing away from me, so I cannot not get a good look.’ I remember watching him confirm the gender, check fingers and toes, but kept going back. He told us ‘not to worry.’ I left that appointment wanting to share the great news of, ‘we’re having a baby boy,’ but it was a double-edged sword.”

‘There was something wrong with his face. ‘It’s not fair! I wasn’t supposed to have a baby like THIS.’ My husband kept telling me the doctor was wrong, but I knew otherwise.’ Mom a ‘blubbering mess’ after ultrasound reveals son’s cleft lip and palatte

“I walked to the parking lot, then to my car. As soon as the door closed, and no one was watching, the tears started to flow. How could there be anything wrong with my baby?! I couldn’t even picture it. It didn’t make sense. I felt like I let everyone down.”

‘After losing twins, we thought we’d paid our dues. Our life’s suffering was now complete. We were wrong.’: Mom loses ‘rainbow baby’ with heart defects, knows she will meet him ‘in heaven’

“We were overjoyed at my pregnancy. New life was coming! But scans and tests told us it’d come with major heart defects, a missing chamber, faulty valves, and an aorta split into 2 pieces. Blindness. Deafness. A cleft lip and palate. Still, doctors were hopeful. Until they weren’t. ‘He’s a sick guy.’ I was told this in a ‘why the long face? didn’t you expect this?’ kinda way.”

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