cleft lip

‘Are you ready to let her go? Babies sometimes need permission to go.’ I was so focused on bringing her home, I was shocked.’: Couple accept Trisomy 13 diagnosis, ‘Our angel had a short mission on Earth’

“’Some babies with this condition didn’t live past 7 days.’ I was heartbroken. I started thinking of my father. It was his first grandchild, and he probably couldn’t meet her. My sister was coming in 12 days, and she might not make it in time. I told my husband, ‘I’m not going home without our baby.’ I was so focused on bringing her home, her words shocked me.”

‘The doctor came in, and instantly, the room felt off. ‘I’m surprised your baby made it this far.’ I felt like I blacked out.’: After multiple miscarriages, mom gives birth to baby with Trisomy 13, ‘To us, he was perfect’

“We saw a heartbeat. This was actually happening. But I couldn’t shake the fear. I kept saying to people, ‘IF we bring this baby home.’ That’s when the words came: ‘There are multiple things wrong with your baby.’ We got to the parking lot, and I just screamed.”

‘Are you joking?’ My doctor had a very serious look. ‘Pregnancy is not something I’m allowed to joke about.’ I’d been taking birth control pills.’: Mom births warrior baby with ‘sweet cleft smile’

“I said goodbye to his sweet wide smile and tried to hold it together as the nurse carried him away. The second I got to the café, with my COVID-19 mask under my chin, I ugly cried into my sandwich. I texted my best friend, ‘I’m going to puke or soil my pants.’ I was a ball of emotion.”

‘The doctor paused at the end of the bed. ‘Uhhh…it’s a boy that looks a lot like a girl!’ My husband took a closer look. ‘OH MY GOD, IT’S A GIRL!!!’: Mom births baby with cleft lip, ‘She is my hero’

“We cried loud and hard and basked in that moment of complete shock and joy. The room seemed so loud, when suddenly somewhere in the room I hear the words, ‘What about the lip…’ and then deafening silence. I shot straight up, picked her up, and flipped her over.  The world stopped. ‘Babe look….’ My husband turned pale.”

‘It took him nearly an hour and a half to finish a bottle. Milk would come out from his nose, his ears. EVERYWHERE.’: Boy’s cleft lip and palate ‘gave him a chance to know why he’s special from an early age’

“I was alone when they told me. I do remember carrying my still squirming baby boy up the stairs to his room and collapsing on the ground next to his dresser, unable to move, unable to even cry. A strange thing happened during this time. I grew up. I got tough. To the rest of the world, it was a defect, but to us, it was precious.”

‘This kitten isn’t going to sell.’ He had a cleft lip, crooked jaw, and one eye. She was going to kill him.’: Animal lover opens her home to special needs kitty, says ‘He opened my eyes to a whole world that deserves more attention.’

“I fell in love the second I saw him. He was just skin and bones and clearly malnourished. The breeder didn’t want her buyers to know her cat had genetic issues or was bred too soon. I could tell Cricket would fit right in with our crew.”

‘What’s wrong with her? Can it be fixed?!’ I had wide-set eyes, webbed fingers. People can’t help but stare.’: Woman meets child with similar Craniofacial differences, ‘I hit the jackpot and found belonging’

“I’m a closet Web MD researcher. I typed in all the things I was born with and a term popped up. Low and behold, there were kids all around the world that looked like me! I’ve always made up wild exaggerations as to why I was born this way. Now, I need no answer. For the first time in my life, I can say, ‘Me too.'”

‘Excuse me, my child has a question about your face.’ Others pulled their kids away like I shouldn’t be looked at.’: Woman with Craniofacial differences reminds us to use ‘kindness’ to approach uniqueness

“In middle school, kids started to stare and ask, ‘Why does your face look smooshed? What’s wrong with your nose?’ My mom would tell me how pretty I was and I’d always say, ‘You’re my mom, you have to say that.’ I’d spend so much time buying cuter clothes, different makeup, more jewelry to overshadow my face. But when I stripped it all down, my confidence was gone.”

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